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A MyParkinsonsTeam Member asked a question 💭
Burlington, KY

The MJFF 360 document offers some of the following actions for people with PD to make every step count. Many will sound familiar because we have discussed many of these actions within this community
- Modify diet and/or medication for optimal medication effectiveness
- Continue exercising and adapt as necessary
- Add allied healthcare services as needed
- Manage financial affairs
- Optimize sleep quality
- Advocate for yourself

What has your experience been with these actions? Please share… read more

December 8, 2023
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Reactions
A MyParkinsonsTeam Member

I'm bringing this info to my bew neurologist specialist just in case. Thanks again. Keep up the good work keeping us informed

December 8, 2023
A MyParkinsonsTeam Member

I have found positive steps yield positive results.

December 8, 2023
A MyParkinsonsTeam Member

I have found that many medical professionals know very little about Parkinson’s Disease, particularly non motor symptoms. Lately, when I need to see a specialist I ask my neurologist if he is aware of a doctor in that field who is knowledgeable about Parkinson’s Disease that he can refer me to. I also came across an article on explaining Parkinson’s Disease to medical professionals who are not neurologists. I try to email a copy of the article to all of my medical providers. What I have found is that my doctors don’t show much interest in receiving the articles but my allied health providers such as physical therapists, psychologist, dentist, and optometrist are very appreciative. Here is a link to the article.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC73...

Let me know what you think. My neurologist thought it was very good. I think the more we can share knowledge of PD with health care providers the better we will all be.

December 8, 2023
A MyParkinsonsTeam Member

Melissa, I don't think you are out of line, I understand your frustration. Someday, if you would like to know what I think the reason is we often get so little info from our docs, let me know and I share my thoughts. right now, fell anything you like but then get back out there and learn as much as you can and don't stop asking. You have evert right to make each day the best it can be and you have a community to support you.
Thanks for sharing, Maria

December 10, 2023
A MyParkinsonsTeam Member

MelissaLauer—- I also go with questions when I see my PD doctor. But, that’s the 1st doctor who honestly said she didn’t have an answer. Doctors load us up on Med’s and wish for the best for patients.

If I’m out of line I apologize

December 10, 2023

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