Hubby’s Hallucinations Are Increasing And He Roams House At Night In Confused State. Sometimes I Feel Unsafe. | MyParkinsonsTeam

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Hubby’s Hallucinations Are Increasing And He Roams House At Night In Confused State. Sometimes I Feel Unsafe.
A MyParkinsonsTeam Member asked a question 💭

It was recommended that I lock my door at night, and he has tried to unlock the door using scissors and a knife. Friends say it is no longer safe for me to stay with him by myself. Has anyone else had experiences like this?

posted January 9
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A MyParkinsonsTeam Member

Thank you Dale. Reached out to his doctor and we will be meeting with social worker to find resources. Hope you are having a good day

posted January 11
A MyParkinsonsTeam Member

My sister’s husband passed away from Alzheimer’s. He had the dementia very badly He could be violent at times. He would lock her out of the house and one night she had to sleep in the truck. Fearing for her safety she eventually had to place him in assisted living and he was very docile and enjoyed being there more than at their home. This was very odd because no one loved their home more than he did. He owned and lived on a 600 acre farm that he farmed and raised cattle. He thought no one owned a farm as great as his. When the dementia started he spent hours begging my sister to take him home but he was at home. She would ask him where home was but he didn’t Know where he wanted to go. When he went to the nursing home he was completely satisfied and settled down. He has since passed away. He spent hours every night getting out of bed and getting fully dressed including tying up his boots my sister would coax him back to bed and he would start all over again. He said he needed to go home because people would talk about them for spending the night together. They had been married 30 years. She didn’t get to sleep very nuch. I think he had what the Doctors call “sundowners “. It is devastating to see the decline in such a vibrant person that you love. Prayers and best wishes to all the families facing this horrible diagnosis. My personal opinion is that assisted living, possibly a good nursing home, one that is trained in this field, is the only answer. It is almost impossible to keep them at home unless you have a lot of willing hands to help 24/7. Blessings and prayers to you.

posted January 9
A MyParkinsonsTeam Member

This isn’t safe for you and it isn’t safe for him either. There are resources available to you. You either need to get 24/7 help at home or get him into someplace where he can be helped.

posted January 11
A MyParkinsonsTeam Member

Thank you all. I found a wonderful CNA who will help some nights!!!

posted January 13
A MyParkinsonsTeam Member

Ask the neurologist if there are meds that can help. If not, you probably need to find a nursing home for him.

posted January 10

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