If You Have Experienced Hallucinations, How Early Did They Start In Your Disease Process? Before Any Motor Symptoms Or Cognitive Decline? | MyParkinsonsTea

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If You Have Experienced Hallucinations, How Early Did They Start In Your Disease Process? Before Any Motor Symptoms Or Cognitive Decline?
A MyParkinsonsTeam Member asked a question 💭

It has been over a year since my first neurologist appointment. Since I had no motor symptoms, he was unable to give a definitive diagnosis. I still don't have any motor symptoms but did have a DaTscan that was indicative of Parkinson's or Lewy Body Disease. I'm going back in a week and a half for my follow-up appointment. I've started with hallucinations--not many and not frequent but disconcerting nonetheless. In my local boxing group, no one else has REM sleep behavior disorder and everyone… read more

posted January 13
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A MyParkinsonsTeam Member

Already take it for the RBD, along with a low dose of clonazepam. The hallucinations occur when I am awake, usually before I fall asleep but in a low light environment. I’ve added a nightlight to the environment and it helps. What concerns me is that they have happened at all at this stage of my disease process.

posted January 13
A MyParkinsonsTeam Member

There are suggestions that melatonin can help. There are also alternative and homeopathic supplements but not sure you would want to try these
https://www.mayoclinic.org/diseases-conditions/....

posted January 13

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