It has been over a year since my first neurologist appointment. Since I had no motor symptoms, he was unable to give a definitive diagnosis. I still don't have any motor symptoms but did have a DaTscan that was indicative of Parkinson's or Lewy Body Disease. I'm going back in a week and a half for my follow-up appointment. I've started with hallucinations--not many and not frequent but disconcerting nonetheless. In my local boxing group, no one else has REM sleep behavior disorder and everyone… read more
Already take it for the RBD, along with a low dose of clonazepam. The hallucinations occur when I am awake, usually before I fall asleep but in a low light environment. I’ve added a nightlight to the environment and it helps. What concerns me is that they have happened at all at this stage of my disease process.
There are suggestions that melatonin can help. There are also alternative and homeopathic supplements but not sure you would want to try these
https://www.mayoclinic.org/diseases-conditions/....