Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
April 6, 2024
 · 
Reactions
A MyParkinsonsTeam Member

Take care of each other for as long as you can.

April 8, 2024
A MyParkinsonsTeam Member

I am a lot younger than my husband (17 years) and generally very healthy and active, so the odds are I will survive him, not vice versa. If something unforeseen were to happen to me, Jim's kids would probably be willing to take him in or move him to a facility near their homes, so I know he would be taken care of, physically at least. Emotionally would be really hard either way, as we are very close to each other as well as very isolated from others, so being left behind would be devastating.

April 7, 2024
A MyParkinsonsTeam Member

This has been a tough year for us. We are not strangers to health issues. I was 35 when I was diagnosed with Epilepsy. I readily admit I handled that poorly. My husband rose to the occasion like a champ and really saved me. Fast forward, seizures are finally controlled, we moved to our forever home, we quit smoking and bam! my life went sideways fast. I went doctor to doctor. I was in agony most of the time. I couldn't even turn over in bed. Seven years of this. As things got worse i was running out of doctors. After a LOT of research I talked to my neurologist and presented everything I had. Now we had a diagnosis and there was a great deal of relief and even joy now that we knew. I think I was happier. My husband is the pragmatist. But I think he is understating the future and I am pretty scared for myself and him. He seems to be focusing on the physical and I am struggling with the mental/emotional issues. As the one with the medical problems I get crazy about 'pulling my weight " I detest laziness.....and now I am at the mercy of my disease and forced to park πŸ˜– My husband gets so mad at me because I feel like I gotta do EVERYTHING I can possibly do today, now, what if I can't do it tomorrow. So I do whatever till I can't move or in too much pain. We are at cross purposes. He wants me to spread it way out πŸ™„ I don't think I have that kind of time especially after a VERY scary and serious case of covid. Things have been sliding since February. Of course my meltdown when I had to have 3 procedures for skin cancer in February 😱 On the positive side, I did pass my mammogram πŸ‘
I thank God for my husband πŸ™
I thank God I am here πŸ™
sorry for the long post 😏

April 7, 2024
A MyParkinsonsTeam Member

I cant wory about that. If i did that is all I would do.

April 7, 2024
A MyParkinsonsTeam Member

I know this sounds trite but worry does not a single thing for you or add another day to your life. Preperation does.You have been doing a great job so far. Your husband chose a good woman ❀

April 6, 2024

Related Questions

View All
A MyParkinsonsTeam Member asked a question πŸ’­
Waite Park, MN

A MyParkinsonsTeam Member asked a question πŸ’­
Isle of Wight,