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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
December 26, 2024
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Answer Summary

Members responded to the question about neck problems with Parkinson's disease with widespread recognition, confirming that neck stiffness and... Read more

Members responded to the question about neck problems with Parkinson's disease with widespread recognition, confirming that neck stiffness and pain are very common PD symptoms. Several members shared that PD pulls the body inward, especially targeting the head and neck, and described relief through heating pads, massage, stretching, muscle relaxers, Toradol shots, and clonazepam, though many noted the frustration of having to beg doctors to prescribe helpful medications. A recurring theme was the exhausting cycle of managing a degenerative condition while facing barriers to adequate treatment, balanced with humor and strong community solidarity.

A MyParkinsonsTeam Member

Clonazepam belongs to a class of medication Doctors get a lot of grief for prescribing. It doesn’t matter what side of the pond you are on, the treatment is the same.

Insurance companies have way too much power. Doctors should be able to prescribe what THEY feel is necessary. They have the degree.’

December 29, 2024
A MyParkinsonsTeam Member

PD tries to pull us in towards the middle. Its number one target is the head. It activates muscles in the neck to push the head down towards the center of your body. It can also pull you to one side or the other.

December 26, 2024
A MyParkinsonsTeam Member

Clonazepam (after literally months of asking my doctor for it) seems to help.

December 29, 2024
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member I get it more from forward and back movement. It's like I'm struggling to support the weight of my head (must be all the rocks in it!); the pain is mostly at the back, limited to "off" periods (between meds).

December 29, 2024
A MyParkinsonsTeam Member

Fortunately my only pain in my neck comes from my DIL.

December 27, 2024

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