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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyParkinsonsTeam Member asked a question 💭
Indianola, IA

My neurologist told me this should be the time I’m making memories while I can. My husband and children surprised me with a cruise for our whole family. That was on my bucket list. The trip was over a year away and the grandchildren enjoyed counting down. When we got there and were going on excursions I couldn’t make it walking all the way. My son asked if I was in pain . I couldn’t only nod it hurt so bad. Another one of my sons got me a wheelchair. From then on I had to have a wheelchair when… read more

March 31, 2025
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Answer Summary

Members rallied around a heartfelt question about accepting physical limitations, like needing a wheelchair during a family cruise that was a... Read more

Members rallied around a heartfelt question about accepting physical limitations, like needing a wheelchair during a family cruise that was a cherished bucket list moment. Several members shared that grief over lost abilities is real and valid, reminding one another that it is okay to cry and that feeling robbed of your former self is a common experience in the Parkinson's community. A recurring theme was finding strength through adaptation and community, with members encouraging one another to keep going, lean on support, and hold onto the motto 'I can, I will.'

A MyParkinsonsTeam Member

Thank you all! Didn’t want to sound like I was complaining but I don’t share these things with anyone else.

April 8, 2025
A MyParkinsonsTeam Member

Denise we adjust as our limitations slow down. We find ourselves trying other methods to compensate for what we lose. Add a walker to help. Change eating habits. But we don't give up we continue to be strong.
I CAN I WILL.. a good thought to keep with you. CAROL

April 3, 2025
MyParkinsonsTeam

Accepting limitations can be emotionally challenging, but it's important to remember that using mobility aids like a wheelchair isn't giving up - it's actually taking control of your life and choosing to fully participate in precious moments with your family. Many MyParkinsonsTeam members have shared similar experiences of Show Full Answer

Accepting limitations can be emotionally challenging, but it's important to remember that using mobility aids like a wheelchair isn't giving up - it's actually taking control of your life and choosing to fully participate in precious moments with your family. Many MyParkinsonsTeam members have shared similar experiences of initially seeing mobility aids as a sign of weakness, only to discover they actually enable more independence and meaningful experiences. Rather than viewing these changes as losses, try to reframe them as adaptations that allow you to continue making wonderful memories with your loved ones. Your cruise experience is a perfect example - the wheelchair made it possible for you to join excursions and share in your family's joy. Remember, Parkinson's means learning to adapt to changes and accepting help when needed. This isn't about giving up - it's about finding new ways to live life to its fullest.

March 31, 2025
A MyParkinsonsTeam Member

That’s why we are here 😉

April 17, 2025
A MyParkinsonsTeam Member

Denise you have a good friend in Ms. Yarnall. I join her in wise advice🤗🙏....................Q

April 4, 2025

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