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A MyParkinsonsTeam Member asked a question 💭
Erie, PA
August 31, 2025
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A MyParkinsonsTeam Member

I got it covered after denial, bit more expensive was not better for me.

September 1, 2025
A MyParkinsonsTeam Member

How long did you give it before you changed back?

Are you on Rytary now?

September 1, 2025
A MyParkinsonsTeam Member

Because it's so new, is it covered by insurance?

August 31, 2025
A MyParkinsonsTeam Member

I have been taking Rytary. a little research says that Crexont has a bit more "staying power". meaning that it takes longer to "go off:. I think I will talk to my NP next time I see her

August 31, 2025
A MyParkinsonsTeam Member

Snick--I believe that Crexont is another name for Carbidopa/Levadopa (C/L). This is one of the initial drugs given to many Parkinson Disease (PD) patients. My wife Faye was diagnosed with PD in 2020, and prescribed C/L 100/125. She was initially told to take one pill 4 times per day. Problem was that the "on time" of effectiveness for her was usually 2.5 to 3 hours. Her first indication of the "off time" was noticeable weakness in her legs. I begin giving her the first dose as soon as she awoke in the mornings, normally around 6 am. I then spaced the following doses for 3 hour intervals. That worked better for awhile. However, note that the C/L itself has side effects (as all meds do.) One side effect for Faye was pain in her jaws which mimicked TMJ. We actually consulted a TMJ specialist in late 2023, who finally conceded that Faye's problem stemmed from her PD, and not from ordinary TMJ. Unfortunately, that treatment cost us about $3000 and many trips for treatment. Live and learn. But our experience may help you or others.
Lastly, I have concluded that PD will not likely be "cured." The objective is to treat it with exercise and meds to maintain mobility and indepencence as long as possible. This is a "moving target" as meds lose effectiveness, some interact with other meds or supplements, and side effects may sometimes be too harmful. Keep trying, keep active, and keep pressing your doctor for meds to improve.

August 31, 2025

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