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A MyParkinsonsTeam Member asked a question 💭
Fredericksburg, TX
November 19, 2025
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Answer Summary

Members responded to the question about whether Parkinson's patients tend toward negativity by agreeing it is a very real symptom tied to... Read more

Members responded to the question about whether Parkinson's patients tend toward negativity by agreeing it is a very real symptom tied to dopamine loss, and several shared that accepting the diagnosis is an ongoing process with good and bad days. Practical themes included the value of antidepressants and anxiety medication for improving quality of life, the importance of day-to-day living without self-blame, and caution around medication management, including the serious risk of serotonin syndrome. A recurring theme was leaning on family, faith, and community support, with one member sharing the heartbreaking reality of Parkinson's-related dementia and the love it takes to keep a loved one safe at home.

A MyParkinsonsTeam Member

I think over time you accept the diagnosis, however I know that when something new comes down on you I can cause a negative period because it could something you love away or a piece of your independence. Depending on the symptom where it stays or goings you have to find a way to get over it. This when you need positive family and friends around. You need to find work arounds, that enable you to carry on day to day. You have to take every day on its own. Yes plan for things but live day to day. You may not have a good day were you had plans but cannot carry through. Look yo the next day, don't beat yourself up about it. (Great advice I give, if I could only follow it)
Yes you are going to have bad days and be negative i don't know anyone with a chronic disease that doesn't have bad days or a negative phase. Be good to yourself and live day to day.

November 22, 2025
A MyParkinsonsTeam Member

Hey Greg 👋 thanks for keeping me straight, I was over generalizing which I have a habit of doing explaining what I'm going through to people .... the fine line of medication is a very tricky issue and I've also been hospitalized with serotonin syndrome ... absolutely not a fun thing and that horrible experience stays with you forever, controlling a multitude of decisions from there on out!! God Bless All of Us 🙌

November 23, 2025 (edited)
A MyParkinsonsTeam Member

Can be a major symptom for some, dopamine is the feel good element that we lack so it's a really real issue!!! The constant unpredictability of symptoms can lead to complete apathy or the negative responses!! My experience has proved the antidepressants/anxiety medication I finally gave into taking has improved my overall quality of life!! God bless your patience and I'll pray for best for both of you 🙏

November 19, 2025
A MyParkinsonsTeam Member

Hello, after many years of negotiating with this nasty, ugly kidnapper named Parkinson's, eventually gets on next level, which is Parkinson related dementia, and I was not, I am not ready to face it, but is here, have research a lot about medication to help and get some benefit, but is limited, yes Carb/Levo help on keep body movement, but do not prevent the loss of cells on the brain, for my wife, only meds helping some on her mental stage is Nuplazid and Quetiapine, my children and myself have found that not many antidepressants or antianxiety meds will help her, and we try to keep her active and safe at home, and several times during the day, she does not remember this is her home, but we stay by her side, and to be honest, I hate that there is only one way out to release her from this *&%$#*kidnapper, and I have no idea how it will be

November 24, 2025
A MyParkinsonsTeam Member

Hi Dawn, dopamine is the signal carrier to the nerve and muscles. Serotonin is the feel good chemical, and is a fine line to walk with meds. I ended up in the hospital with Serotonin syndrome, not fun, at one point it was questionable if I was going to go home. I did come home but have to really careful when adding new meds

November 23, 2025

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A MyParkinsonsTeam Member asked a question 💭
Asheville, NC

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