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She is on the slow release tablets from 11pm but this does not ease it. She can't take anything with quinine as she is on blood thinners has anyone any suggestions please? Or has anyone had botox injections, have they worked? Thank you

December 20, 2025
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A MyParkinsonsTeam Member

Yeah I believe it's the meds aswell as she didn't have these terrible cramps before going onto the meds. Anytime we see the nurse all they say is take another tablet! Their not interested in trying other meds it's ridiculous your just left in agony and getting no rest which is vital.

January 3
A MyParkinsonsTeam Member

Too much carbidopa levodopa causes me to have dystonia in my left foot toes! I only take one and a half pills a day. That’s a half pill three times a day. And I still sometimes get the dystonia. I believe it’s the carbidopa levodopa.

January 2
A MyParkinsonsTeam Member

Hello, we stopped her taking the slow release ones at night but she takes 2 of the fast release 12.5/50, should we stopped these aswell? There's so much info out there you don't know what to go with. They say the meds can be the cause but then say you need the dopamine. She never gets a full night's sleep.

January 2
A MyParkinsonsTeam Member

Your mom should not take levo car idosa before bed that’s what I had to do for my husband,talk to her doctor please,she needs to rest and so does you

January 1
A MyParkinsonsTeam Member

I take 200/50 of leva dopa carbidoa every 3 hours

December 22, 2025

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