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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I would really enjoy if you could shed light on the relationship aspect of PD. Personal relationships seem so very different and difficult

A MyParkinsonsTeam Member asked a question 💭
Silver Springs, FL
December 31, 2025
 · 
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MyParkinsonsTeam

How does Parkinson's disease affect personal relationships?

Parkinson's doesn't just affect you—it impacts everyone close to you. The disease can strain even the strongest relationships because it changes the dynamics between partners, family members, and friends.

Many people find that their loved ones don't fully Show Full Answer

How does Parkinson's disease affect personal relationships?

Parkinson's doesn't just affect you—it impacts everyone close to you. The disease can strain even the strongest relationships because it changes the dynamics between partners, family members, and friends.

Many people find that their loved ones don't fully comprehend the physical and mental struggles they face daily. This lack of understanding can lead to feelings of loneliness and loss of empowerment, even when surrounded by supportive people.

For couples, the challenge becomes especially complex. When a spouse becomes a care partner, they're trying to balance two roles—being both a caregiver and a companion. This can feel overwhelming and create tension in the relationship.

Some specific challenges include:
- Changes in daily activities and routines
- Shifts in independence and roles within the relationship
- Emotional strain from managing symptoms
- Cognitive changes that may affect personality or behavior
- Feelings of guilt or frustration on both sides

A MyParkinsonsTeam member who's been married 26 years shared that the last four years dealing with Parkinson's have been a big challenge, emphasizing the importance of being educated about the disease and committed for the long haul.

Another member described how their husband developed delusions related to Parkinson's, which affected their relationship in unexpected ways. What can help with relationship difficulties?

Some MyParkinsonsTeam members have found counseling or relationship therapy helpful. Others take short breaks during emotionally intense moments to reset.

It's important to remember that sudden changes in behavior or personality can sometimes stem from Parkinson's-related cognitive changes rather than relationship issues alone. Understanding this distinction can help both partners approach difficulties with more compassion.

Open communication is critical. Keeping your partner informed about what you're experiencing—both physically and emotionally—helps them understand your needs better.

Many people find that connecting with others who truly understand makes a significant difference. Within communities like MyParkinsonsTeam, you're surrounded by people who get it because they're living it too. This shared understanding can help reduce the loneliness that sometimes comes with feeling misunderstood by those closest to you.

December 31, 2025
A MyParkinsonsTeam Member

It sounds like people in your family or circle don't understand PD and therefore become judgmental rather than knowledgeable and patient. I have taken the position to be an advocate and teach others about the realities. of PD. Rather than complaining I explain what I am going through.

I. have learned to respond frankly when someone says "how are you doing?" I RESPOND WITH "DO YOU REALLY WANT TO KNOW?". People who care about you really do want to know and will listen intently...and will develop a sense of empathy.

I try not to preach but I explain what I am up against and I've found that when people learn about the ravages of PD, they really WANT to know and generally the blame and judgmental attitude disappears.

Being sincere, informative and frank goes a long was to setting new expectations.
If people don't respond positively, they don't belong in your life. Having supportive people around you makes it easier to deal with the realities of PD.

January 7
A MyParkinsonsTeam Member

I am not dealing with caretakers - fortunately, I don't need that right now. However, I also feel my personal relationships are strained and stange! I feel like my bff (always wanted to say that!) started looking for new friends and avoiding me as soon as she found out about my PD. That felt hurtful.

I know I get blamed by some family, at times, for saying things I never thought I said (at least in my perspective), and feeling like I can't win because I don't know if I miscommunicated or even said anything at all! So, I tend to give the benefit of the doubt all the time til I feel like I'm suffocating. Then I sometimes lash out, or get depressed.

One thing that bothers me most is that other people don't want to discuss PD or what's going on with me... sometimes I feel like a catchall for whatever goes wrong since I am the "identified patient" with the issues of PD.

I have always been a strong woman, and am working on these relationships daily. I wish I had more positive input to help.

January 7

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