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Does anyone ever seem to have worse symptoms after taking levidopa/carbidopa sometime I feel like mine worsens
Answer Summary
Members shared mixed experiences with levodopa/carbidopa, with some reporting worsening symptoms like dyskinesia (involuntary movements),... Read more
I can't afford the copays for these extra programs. @A MyParkinsonsTeam Member and I read our Bible out loud together, first thing in the morning, and just before we go to sleep. We also sing out of our hymnal, but I'm not doing very well in that area. Singing has been my main form of expression since my earliest memories. I never did anything professional, but I joined every choir available and would sing out loud at the drop of a hat. Every church I've ever been part of, we the exception of the one we currently attend has asked me to sing specials. I now realize that my voice has lacked quality for a couple of decades. Now, I rarely have the lung capacity to be heard in our very small congregation, and I hardly ever get through a hymn, here at home without making some kind of mistake with the tune, the words, or something, even with hymns I've known all my life. It's disheartening and discouraging. However, there is always a song in my heart, and I have 3,066 songs, mostly hymns and songs of praise to God on my "Liked Songs" playlist on Spotify! And "When I Get to Heaven, I'm Gonna Sang, Sang, Sang" with Johnny Reb Fulmer! Ha!Ha!
@A MyParkinsonsTeam Member, Singing with @BartBedwll is also free and I don't have to get dressed which is sometimes too exhausting to be worthwhile. My grandmother, who was an amateur actress in clubs, here in Kansas City, taught me when I was preschool age, how to use my diaphragm to project my voice. I was active in every church and school choir with which I came into contact. As an adult, I was requested to sing specials at church and in nursing homes, often on a weekly basis. Often people expressed amazement of how such a powerful voice could come from such a small person ( not quite 4' 11"). I could hold a note longer than anyone I knew. Now, most of the time, I don't have breath enough to finish a measure of music and I'm doing good to project my voice so Bart can hear me on the other side of our king size bed.
My speach got so much better after I went to therapy. I don't know if I'm supposed to mention the program I participate in but they are wonderful. It is a lifelong daily exercises for someone with PD. It also incorporates swallowing exercises. Frequently deaths in PD are associated with aspiration. They will stop me if this isn't allowed. Speak Out.org
Crexont has been a bit of a nightmare! It irritates your stomach if you have GERD. Every time it releases its dose , I get frothy spit. It goes in my throat and mouth where the acid is fizzing my teeth away! To those of you with GERD (acid reflux) stay away from
Crexont! It’s miserable!
Or maybe time for a totally different medicine!!!
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