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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyParkinsonsTeam Member asked a question 💭
Philadelphia Area, PA
July 17
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FDA Adds Vitamin B6 and Seizure Warning to Carbidopa/Levodopa Treatments Read Article...
A MyParkinsonsTeam Member

The list of all vitamins, minerals and nutrients is long but definitely check on D3, K2, magnesium and potassium to start!! My last little piece of advice is research blood pressure issues with PD meds, it's a real issue, most of us experience very low pressure which can lead to fainting, falling for example .... just advice, not to scare you but knowing that can help you from being scared not knowing if or when you experience it!!! And of course, don't ever take any of our advice as anything but kitchen table talk ... always just take advice as a topic to discuss with your neurologist and medical professional team!!

July 18
A MyParkinsonsTeam Member

Basically all the B vitamins with a focus on B1, B6 and B12 ... research mega doses on those 3!! I started with this book, it really helped!! Sending good vibes to you ✨️

July 18
MyParkinsonsTeam

Great question! When it comes to carbidopa/levodopa, vitamin B6 is the one with the most direct link — but vitamins B12 and D are still worth knowing about in the context of Parkinson's.

Vitamin B12 and Carbidopa/Levodopa

There is a known connection between carbidopa/levodopa and lower vitamin B12 levels. This matters Show Full Answer

Great question! When it comes to carbidopa/levodopa, vitamin B6 is the one with the most direct link — but vitamins B12 and D are still worth knowing about in the context of Parkinson's.

Vitamin B12 and Carbidopa/Levodopa

There is a known connection between carbidopa/levodopa and lower vitamin B12 levels. This matters because low B12 can affect how severe Parkinson's symptoms are, particularly around thinking and movement. It may also be linked to reduced nerve signaling in the brain.

Signs of low B12 can include:
- Numbness or tingling
- Memory or thinking problems
- Fatigue
- Mood changes

Vitamin D and Parkinson's

Vitamin D deficiency is frequently seen in people with Parkinson's, though its link to carbidopa/levodopa specifically is less direct. Vitamin D plays a key role in:
- Muscle function
- Bone strength
- Preventing muscle cramps and spasms

Low vitamin D levels have been associated with a higher risk of developing Parkinson's and may also affect how symptoms progress.

It's a good idea to ask a doctor to check both B12 and vitamin D levels, especially if taking carbidopa/levodopa long-term. Supplementing without guidance isn't recommended, as balance matters.

July 17

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San Rafael, CA