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August 13
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Poll: 74% Have Trouble Sleeping ‘Most Nights’ With Parkinson’s Read Article...

Answer Summary

Members responded with helpful personal experiences and practical suggestions for the problem of nighttime body tension that makes it hard to... Read more

Members responded with helpful personal experiences and practical suggestions for the problem of nighttime body tension that makes it hard to sleep with Parkinson's. Several members shared that magnesium supplements taken before bed, particularly Magnesium Glycinate, helped relax their muscles, while others mentioned medications like clonazepam and ropinirole as options worth discussing with a doctor. A recurring theme was that nighttime tension may be linked to medication wearing off or stress buildup, and members encouraged tracking symptoms, trying a calming bedtime routine, and speaking with a neurologist about adjusting treatment.

A MyParkinsonsTeam Member

Also, at night do you take any carbidopa or levodopa? Before bed? If so, ask your doctor about the potential benefits of taking the "CR" (controlled release) version.

Also also, if you're not already, try taking a magnesium supplement before bed (Magnesium Glycinate works best for me). This can also reduce those pesky muscle cramps.

August 13
A MyParkinsonsTeam Member

Nighttime can be difficult with Parkinson’s for several reasons. Your medication may be wearing off, which can bring back stiffness, muscle tension, cramping, pain, or restlessness. Some people also experience anxiety or irritability during an “off” period, so the tension and anger may be connected rather than two separate problems.

Night is also the quietest part of the day. Once the distractions are gone, the mind has plenty of time to revisit symptoms, fears, and all those “why this?” and “what happens next?” questions. Those thoughts can keep the body on alert, and then the tension makes it even harder to sleep.

Try noticing when the tension begins and whether it follows your medication schedule. Write down whether it feels like stiffness, painful spasms, restless legs, internal shaking, anxiety, or racing thoughts. A calm bedtime routine, gentle relaxation, less screen time, and a cool, quiet room may help somewhat.

Definitely describe the pattern to your neurologist. It may be related to nighttime “off” time, medication side effects, anxiety, a sleep disorder, or a combination of things. Your neurologist may see something in the timing that can be treated or adjusted. Don’t change the dose or timing of your Parkinson’s medication on your own.

August 13
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member this is what I use, I take two tablets as I go to bed. I've found it helps me to sleep through longer and be less wakeful, but still quite alert through the day.

BUT, if your doctor has prescribed your particular version, then he's done so for a reason and you should talk to him about it. I'd be surprised, that's all, as my doc has no truck with what he calls "herbal remedies"...!

Edit...I suppose the actual link might help ...

https://shop.app/p/8058989347054?variantId=4414...

August 18 (edited)
A MyParkinsonsTeam Member

I'm just here to help @A MyParkinsonsTeam Member. I'd say have a word with your doc, but they can be very unhelpful when it comes to supplements rather than pharmaceuticals.

August 14
A MyParkinsonsTeam Member

Ok, so I googled "is ionic magnesium just magnesium glycinate dissolved in water?"

And since the regime of supplements is a region of the extremely vague, the strength of "oh no, it's entirely different" replies I got back tells me that you know what? I wasn't far from the mark.

It may not be glycinate. It may be a simpler salt like simple chloride or sulphate. But those salts would give you stomach upsets on their own

What Ionic-promoters are claiming is that because the magnesium has already dissolved in the water, it is more freely available compared to glycinate - or more accurately, any undissolved salt. I'd like to see some graphs on take-up into the blood stream of MgCl2 and MgSO4 before I swallow that.

Also I'd like to see graphs on how long it stays in the body compared to glycinate, because if it goes in faster, it's normally a fair bet it comes out faster too...meaning you get a quicker, but shorter lasting effect. Not exactly what you want if you're taking it for sleep...you'll get a "buzz" from the quicker absorption, but then lose the effect midway through the night.

At least some of the products seem very close to the debunked discipline of homeopathy, where you are basically buying water, it's been diluted that far.

There may be a genuine advantage to it +except for the homeopathy versions), I honestly don't know. So I'll put my money where my mouth is and get some "ionic" the next time I reorder my good old fashioned magnesium glycinate capsules

Does it print any actual ingredients anywhere on your product? Does it mention "Magnesium as chloride" or Magnesium as sulphate"?

August 13 (edited)

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