Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyParkinsonsTeam Member asked a question 💭
Mcloud, OK
August 25
 · 
Reactions
A MyParkinsonsTeam Member

Thanks Kay, I did just that earlier today. I don't want to be a bother to my Neurologist but he did say that I could message him anytime. I'm not sure what will happen but I'm sure it will be fine. 🙂

August 29
A MyParkinsonsTeam Member

OMG! I am dizzy all day everyday. I will have to talk to my Neurologist when I see him in February. I wanted an in person appointment rather than virtual so I have to wait 9 months to see him. I can message him through Mychart. He is very good about getting back to me.

August 26
MyParkinsonsTeam

Dizziness is a really common experience with Parkinson's, and there are a few reasons it tends to show up.

Some of the main causes include:

- Orthostatic hypotension — a drop in blood pressure when standing up, which can cause lightheadedness
- Medications — drugs like carbidopa/levodopa or amantadine can trigger dizziness as Show Full Answer

Dizziness is a really common experience with Parkinson's, and there are a few reasons it tends to show up.

Some of the main causes include:

- Orthostatic hypotension — a drop in blood pressure when standing up, which can cause lightheadedness
- Medications — drugs like carbidopa/levodopa or amantadine can trigger dizziness as a side effect
- Balance and coordination changes — Parkinson's itself affects the systems that keep you steady

A MyParkinsonsTeam member shared, "It happens when I'm sitting or lying down — when I get up to stand, the dizzy spells happen. I have to stand still and hold on to something for a few minutes before they go away." Here are some steps that may help manage dizziness:

- Talk to your doctor — they can review your medications and dosages to see if adjustments might help
- Rise slowly — taking your time when standing can reduce blood pressure-related dizziness
- Exercise regularly — activities like tai chi, yoga, and walking can improve balance and stability
- Never stop or change medications on your own — always consult your healthcare provider first

If dizziness is lasting hours or even days, that's definitely worth bringing up with your care team sooner rather than later.

August 25
A MyParkinsonsTeam Member

Your description of the onset of an OH episode was perfect! I would add that often times you have only a couple seconds to get down on the floor or the ground wherever you are or risk a headfirst free fall. Trying to find something out of reach can take too long.

August 25

Related Questions

View All
A MyParkinsonsTeam Member asked a question 💭
Newport, OR

A MyParkinsonsTeam Member asked a question 💭
Washingtoncourthouse

A MyParkinsonsTeam Member asked a question 💭
Westminster, SC