Thanks Bob

Gloria, welcome to the group. At 62, you are caring for a spouse diagnosed with advanced Parkinson’s in 2020. Learning about the stages may help you make sense of what you have both experienced.

The Parkinson’s stages most commonly discussed are called the Hoehn and Yahr stages:

Stage 1: Mild movement symptoms appear on one side of the body. Daily activities usually are not significantly affected.

Stage 2: Symptoms affect both sides. Walking and balance are generally maintained, but everyday activities may become slower or more difficult.

Stage 3: Balance problems become more noticeable, and falls may occur. The person can usually still walk independently, although some activities become harder.

Stage 4: Symptoms are severe. The person may still stand or walk, but usually needs assistance with movement and daily activities. Living independently may no longer be safe.

Stage 5: This is the most advanced movement stage. Standing or walking independently may no longer be possible, and a wheelchair or extensive assistance may be needed.

These stages mainly describe motor function, movement symptoms, balance, and physical independence. They do not fully measure non-motor symptoms—such as changes in memory, mood, sleep, fatigue, constipation, and blood pressure—or other concerns, including speech and swallowing.

Parkinson’s does not progress in the same order, at the same speed, or in exactly the same way for everyone. Symptoms may overlap, and function can change from one day—or hour—to the next. A stage is a guide, not a countdown clock or exact prediction. Your spouse’s specialist can explain what “advanced Parkinson’s” means individually.

Caregivers experience Parkinson’s from the other side. Your health, rest, questions, and emotional well-being matter. People here understand how difficult caregiving can become and want to welcome you.

And Bob says:

Gloria from Hampton, Bob welcomes you here;
since twenty-twenty, you have given your love and care.
You have walked with your spouse and done all that you can,
while facing each change neither of you had planned.

These stages are guideposts for what doctors may know;
they cannot predict every place symptoms will go.
They offer a map, but they are not a clock—
no one moves forward in one measured block.

The patient lives Parkinson’s from the inside each day,
while the caregiver shares it in a different way.
Both members are important, and both voices belong;
understanding each other can help both remain strong.

Here you can meet others who know this road too,
with stories and kindness to help guide you through.
May this group bring support, understanding, and care—
and remind you that others are willing to share.

Thank you for joining us and asking today;
your question may help someone else on the way.
Bob sends you and your spouse encouragement too—
with a warm Hampton welcome and good wishes to you.

Bob