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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Memory Problems.
A MyParkinsonsTeam Member asked a question 💭

I am having a lot of problems talking lately . I will be talking and forget a simple word and can't think of it. Friends will add the word for me. I also can't follow conversation when people are talking to with a long story.This is happening more frequently. I only been dignosed a yr ago. Is anyone have this problem and what are you doing for it ?

posted March 1, 2017 (edited)
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A MyParkinsonsTeam Member

I also recommend Cognitive Behavior Therapy

Mertz

posted January 28, 2022
What’s The Most Important Thing You Learned About Living With Parkinson’s This Past Year?
A MyParkinsonsTeam Member asked a question 💭
posted December 27, 2022
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A MyParkinsonsTeam Member

C-7: WHAT DOES THIS MEAN?????

posted 2 hours ago
Would You Get DBS Again?
A MyParkinsonsTeam Member asked a question 💭

If you have had DBS surgery, is it something you would do again knowing what you know now?

posted February 10, 2018
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A MyParkinsonsTeam Member

YES!!!!!! Had DBS app 18 months ago I am so pleased and comfortable It takes a few visits to get stimulator (battery and electrodes) calibrated to your specific symptoms but well worth the time… read more

posted September 3, 2021
Does Anyone Else Have Such Vived Dreams And Talk, Scream Or Holler Out In Your Sleep? Does It Wake You Or Your Wake Your Spouse?
A MyParkinsonsTeam Member asked a question 💭

My husband told me this morning that I screamed out so loud last night that our neighbors could have heard me. I don't remember dreaming about anything. Usually, when I dream, it will wake me up or I wake myself up talking or screaming. Kind of scary but have a neuro appointment on Monday and will discuss it then.

posted November 20, 2015
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A MyParkinsonsTeam Member

Yes I have had that happen to me. One night a very loud sound woke me up and I had a dream and knocked my tv tray over and broke my glasses. I am suppose to take 6 pills a day. Two every four… read more

posted March 13
Does Anyone Else Wake Up Almost Every Hour Of The Night I Never Sleep Through A Whole Night
A MyParkinsonsTeam Member asked a question 💭
posted July 9, 2022
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A MyParkinsonsTeam Member

Thanks Jack,

This is a very accurate and helpful guide!

posted March 12
How To Overcome Fatigue, Anxiety And Poor Sleep
A MyParkinsonsTeam Member asked a question 💭

I have been diagnosed with parkinson since 2007. I had mild case of parkinson. Recently Simnet does not work well. I have Anxiety out of nowhere and yes my personal life is not causing me Anxiety. I should as I am by profession psychologist. I have lot of fatigue and even though I continue to exercise I remained fatigue. any one can recommend what anti-anxiety med they take
Thank you everyone, and have a happy and healthy new year

posted December 31, 2016
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A MyParkinsonsTeam Member

FinleyFox here. Last several months I developed insomnia due to my 6 years of PD. Also, having sleep apnea didn't help. My Neurologist recommended a mild 50mg generic sleep aid to help me sleep… read more

posted August 24, 2022
Handwriting Difficulties
A MyParkinsonsTeam Member asked a question 💭

Ugh, I'm really just venting. I had to write an important number down and of course, when I needed it, I could not read it.

Does anyone else have this annoying problem?

posted November 20, 2017
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A MyParkinsonsTeam Member

voice activation on phone and computer has saved my husband who has this problem

posted March 22, 2022
Has Anyone Tried LSVT Big Therapy?
A MyParkinsonsTeam Member asked a question 💭

Wondering if anyone has tried LSVT Big Therapy and if so, has it helped. I have been doing some research and it seems to give people walking with bigger steps and generally helping people with PD to move easier. Looking for a therapist in the Cherry Hill, NJ area.

posted September 13, 2015
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A MyParkinsonsTeam Member

Kathy -
I have. I only needed the BIG - not the LOUD. (speech) It is good to help you take bigger steps then work with balance. They had me doing cool things on the Bosi ball. They will Taylor the… read more

posted March 5
How Long Were You Able To Continue Working After Your Parkinson's Diagnosis?
A MyParkinsonsTeam Member asked a question 💭

How Long After your Parkinson's Diagnosis Were you Still Working? Did you try and hide your Parkinson's from your employer? Did you leave the job on your own accord or were you "Let Go"?

posted January 23, 2016
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A MyParkinsonsTeam Member

I was diagnosed at the age of 69 in the fall of 2022. By activating my stem cells, I've experienced many health "miracles that lead me to assert that I'm healing. Feeling blessed to connect with a… read more

posted February 18
How Many Out There Have Parkinsonism? Do You Know The Difference Between Parkinsonism And Parkinson's?
A MyParkinsonsTeam Member asked a question 💭
posted April 13, 2017
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A MyParkinsonsTeam Member

In that case, I have Parkinsonism, not PD, since I got it from exposure to a bad insecticide

posted 24 hours ago
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