What’s The Most Important Thing You Learned About Living With Parkinson’s This Past Year? | MyParkinsonsTeam

Connect with others who understand.

sign up log in
Resources
About MyParkinsonsTeam
Powered By

Questions & Answers

Get practical advice and insights from people who understand

Don't see your question? Ask one here
Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
View:
What’s The Most Important Thing You Learned About Living With Parkinson’s This Past Year?
A MyParkinsonsTeam Member asked a question 💭
posted December 27, 2022
View reactions
A MyParkinsonsTeam Member

Parkinsonism isn’t my friend; I didn’t say that. But Requip is; it helps me avoid that feeling of shaking the table and all the silverware while everyone attempts to maintain a straight face knowing… read more

posted July 22
Memory Problems.
A MyParkinsonsTeam Member asked a question 💭

I am having a lot of problems talking lately . I will be talking and forget a simple word and can't think of it. Friends will add the word for me. I also can't follow conversation when people are talking to with a long story.This is happening more frequently. I only been dignosed a yr ago. Is anyone have this problem and what are you doing for it ?

posted March 1, 2017 (edited)
View reactions
A MyParkinsonsTeam Member

I agree with Kathy unless, like me, there is a deeper problem called aphasia. You might talk to your doctor, and if he sees no physical problems, you might follow Kathy’s advice.
Teresa

posted September 2
Does Anyone Else Have Such Vived Dreams And Talk, Scream Or Holler Out In Your Sleep? Does It Wake You Or Your Wake Your Spouse?
A MyParkinsonsTeam Member asked a question 💭

My husband told me this morning that I screamed out so loud last night that our neighbors could have heard me. I don't remember dreaming about anything. Usually, when I dream, it will wake me up or I wake myself up talking or screaming. Kind of scary but have a neuro appointment on Monday and will discuss it then.

posted November 20, 2015
View reactions
A MyParkinsonsTeam Member

It may be time to think of sleeping separately. My husband does the same and for my safety we decided it was best.

posted 7 days ago
Would You Get DBS Again?
A MyParkinsonsTeam Member asked a question 💭

If you have had DBS surgery, is it something you would do again knowing what you know now?

posted February 10, 2018
View reactions
A MyParkinsonsTeam Member

Thank you so very much Patrick. Sorry to hear re: incision/scar placement and bumps of the caps used to cover the electrodes. Good to know. I agree ahead of time. I think these people see so many… read more

posted May 29
In What Ways, If Any, Has Your Parkinson's Affected How You Consume Alcohol?
A MyParkinsonsTeam Member asked a question 💭
posted April 18
View reactions
A MyParkinsonsTeam Member

I don't drink So I wouldn't know

posted 4 days ago
What Triggers Make Parkinson’s Symptoms Worse? How Do You Manage These Triggers?
A MyParkinsonsTeam Member asked a question 💭
posted March 21
View reactions
A MyParkinsonsTeam Member

Hi Frances52
Thank you for your post. Yes, early morning apt's also disturb me even when I take my anxiety pills. I have had this for so long, since childhood. Although unpleasant it is to have… read more

posted September 18
Does Anyone Else Wake Up Almost Every Hour Of The Night I Never Sleep Through A Whole Night
A MyParkinsonsTeam Member asked a question 💭
posted July 9, 2022
View reactions
A MyParkinsonsTeam Member

Thanks Jack,

This is a very accurate and helpful guide!

posted March 12
What Has Helped You Get A Restful Night's Sleep With Parkinson's?
A MyParkinsonsTeam Member asked a question 💭
posted August 29
View reactions
A MyParkinsonsTeam Member

Are use clonazepam and MIRTAZAPINE it works, but not all the time.
Wouldn’t know about the whiskey? Guess it wouldn’t hurt.

posted 18 hours ago
How Many Out There Have Parkinsonism? Do You Know The Difference Between Parkinsonism And Parkinson's?
A MyParkinsonsTeam Member asked a question 💭
posted April 13, 2017
View reactions
A MyParkinsonsTeam Member

I have vascular Parkinsonism. Had been falling for some time until two serious falls and a concussion. After two other neurologists I got a definitive diagnosis. Have memory problem and minor… read more

posted September 19
How To Overcome Fatigue, Anxiety And Poor Sleep
A MyParkinsonsTeam Member asked a question 💭

I have been diagnosed with parkinson since 2007. I had mild case of parkinson. Recently Simnet does not work well. I have Anxiety out of nowhere and yes my personal life is not causing me Anxiety. I should as I am by profession psychologist. I have lot of fatigue and even though I continue to exercise I remained fatigue. any one can recommend what anti-anxiety med they take
Thank you everyone, and have a happy and healthy new year

posted December 31, 2016
View reactions
A MyParkinsonsTeam Member

FinleyFox here. Last several months I developed insomnia due to my 6 years of PD. Also, having sleep apnea didn't help. My Neurologist recommended a mild 50mg generic sleep aid to help me sleep… read more

posted August 24, 2022
Continue with Facebook
Continue with Google
Your privacy is our priority. By continuing, you accept our Terms of Use and Privacy Policy.
Already a Member? Log in