Adrenal failure? I’ve never met someone with the diagnosis. Do you have that? And what are the symptoms?
I have been diagnosed with parkinson since 2007. I had mild case of parkinson. Recently Simnet does not work well. I have Anxiety out of nowhere and yes my personal life is not causing me Anxiety. I should as I am by profession psychologist. I have lot of fatigue and even though I continue to exercise I remained fatigue. any one can recommend what anti-anxiety med they take
Thank you everyone, and have a happy and healthy new year
FinleyFox here. Last several months I developed insomnia due to my 6 years of PD. Also, having sleep apnea didn't help. My Neurologist recommended a mild 50mg generic sleep aid to help me sleep… read more
I am having a lot of problems talking lately . I will be talking and forget a simple word and can't think of it. Friends will add the word for me. I also can't follow conversation when people are talking to with a long story.This is happening more frequently. I only been dignosed a yr ago. Is anyone have this problem and what are you doing for it ?
Yes! I have episodes of forgetting what I am saying ,finding the right words and so on. I do find it is much worse when I am fatigued or stressed. I have a neurology appointment tomorrow and am going… read more
Despite proven effectiveness and wide use of levodopa, usually prescribed as Sinemet® (carbidopa-levodopa), to manage movement symptoms in PD, doubts have lingered over the drug’s long-term safety. Research published Oct 11, 2011 in the journal Neurology, scientists conclude that larger cumulative doses of levodopa, taken for years or decades, do not harm critical brain cells in people with Parkinson’s.
The long-term use of levodopa is associated with dyskinesia and “wearing-off” periods in… read more
Thank you Allan for your post. I have a problem taking Carbidopa/Levodopa- it does not seem to affect my motor symptoms plus the fact that I was diagnosed with MSA. I still take 1-2 tablets (25/100)… read more
If you have had DBS surgery, is it something you would do again knowing what you know now?
Thank you so very much Patrick. Sorry to hear re: incision/scar placement and bumps of the caps used to cover the electrodes. Good to know. I agree ahead of time. I think these people see so many… read more
I have lost a lot of weight in the last month. I am having problems swallowing at times and feel full fast so am not eating as much as I should. I have found I have to stay away from alot of Protien as it interferes with my medications. Has anyone else noticed a large weight drop?
I lost 5lbs in 3 days. Am worried have to go back for the 2nd time for a mammogram the 1st one had to much density. I hope everything is ok.
My husband told me this morning that I screamed out so loud last night that our neighbors could have heard me. I don't remember dreaming about anything. Usually, when I dream, it will wake me up or I wake myself up talking or screaming. Kind of scary but have a neuro appointment on Monday and will discuss it then.
My husband tells me often that I was “busy, last night.” I talk, holler, mumble. Fling my arms & punch out hitting him on occasion. He’ll talk to me & grab my arms & I settle down & go back to sleep… read more
Parkinson’s disease impacts people in many different ways. Not everyone will experience all of the symptoms of Parkinson’s, and if they do, they won’t necessarily experience them in quite the same order, or at the same level of intensity. Even so, there are typical patterns of progression in Parkinson’s disease that are defined in stages.
You might hear your doctor refer to your Hoehn and Yahr stage. This scale, first introduced in 1967, is a simple rating tool used by clinicians as a means to… read more
These stages in the uk are known as 1 mild 2 moderate 3 complex 4 advanced 5 end of life you can also go up in 1/2 stages ie 2.5 to 3 and the rate of progression does not change.
Thiamine HCI (vitamin B1) therapy has been a game changer for me and instrumental in reversing many of my symptoms. It's quite popular in Italy, where pharmaceuticals are not always the first approach used for treatment.
At 4 weeks of 2000 mg daily, Thiamine HCI these are the benefits I have experienced
• improved balance almost normal.
• relief from constipation.
At 8 weeks of 2000 mg daily of Thiamine HCI
• swift movement instead of slow motion.
• ability to get up from a chair or out of… read more
That is the best thing I’ve heard about for years. I shall speak with my neurologist when we meet this month. I feel disgusted with the amount of tablets I consume. Thank you, thank you, thank you… read more
I had mentioned the drug before which was a one pill slow release Amantadine which is called Gocovri, which is being used to treat dyskinesia It has been approved by the FDA. It is for those who experience side effects from amantadine now have another option. The second drug is Exenatide, a medication used to manage diabetes. Primary outcome was an improvement in motor symptoms and may slow the progression of PD. All information was taken from the Parkinson Report Fall/Winter issue just in… read more
Is that the CBD form?