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11168 questions

How Many Out There Have Parkinsonism? Do You Know The Difference Between Parkinsonism And Parkinson's?

A MyParkinsonsTeam Member asked a question đź’­
A MyParkinsonsTeam Member

Erinanne! 🤗🤗🤗🤗🤗🤗🤗🤗

posted April 4

How To Overcome Fatigue, Anxiety And Poor Sleep

A MyParkinsonsTeam Member asked a question đź’­

I have been diagnosed with parkinson since 2007. I had mild case of parkinson. Recently Simnet does not work well. I have Anxiety out of nowhere and yes my personal life is not causing me Anxiety. I should as I am by profession psychologist. I have lot of fatigue and even though I continue to exercise I remained fatigue. any one can recommend what anti-anxiety med they take
Thank you everyone, and have a happy and healthy new year

A MyParkinsonsTeam Member

Yes. Anxiety that hits very suddenly even takes me out of sleep what did you end up taking? I m super sensitive to meds

posted July 9

Memory Problems.

A MyParkinsonsTeam Member asked a question đź’­

I am having a lot of problems talking lately . I will be talking and forget a simple word and can't think of it. Friends will add the word for me. I also can't follow conversation when people are talking to with a long story.This is happening more frequently. I only been dignosed a yr ago. Is anyone have this problem and what are you doing for it ?

A MyParkinsonsTeam Member

I have similar issues although I have had 2small strokes in language areas in.the brain. Speech.therapy help me learn how to deal with it better though stress will bring it on. In my case it’s called… read more

posted March 4

Scientific Support For The Long-Term Safety Of Levodopa Use.... What Does Your Neurologist & You Believe ?

A MyParkinsonsTeam Member asked a question đź’­

Despite proven effectiveness and wide use of levodopa, usually prescribed as Sinemet® (carbidopa-levodopa), to manage movement symptoms in PD, doubts have lingered over the drug’s long-term safety. Research published Oct 11, 2011 in the journal Neurology, scientists conclude that larger cumulative doses of levodopa, taken for years or decades, do not harm critical brain cells in people with Parkinson’s.

The long-term use of levodopa is associated with dyskinesia and “wearing-off” periods in… read more

A MyParkinsonsTeam Member

Thank you Allan for your post. I have a problem taking Carbidopa/Levodopa- it does not seem to affect my motor symptoms plus the fact that I was diagnosed with MSA. I still take 1-2 tablets (25/100)… read more

posted September 3, 2016

Would You Get DBS Again?

A MyParkinsonsTeam Member asked a question đź’­

If you have had DBS surgery, is it something you would do again knowing what you know now?

A MyParkinsonsTeam Member

Thank you so very much Patrick. Sorry to hear re: incision/scar placement and bumps of the caps used to cover the electrodes. Good to know. I agree ahead of time. I think these people see so many… read more

posted May 29, 2023

In Layman’s Terms, Is Parkinsonism Worse Than Parkinson’s And Is The Prognosis Of It Worst Than Parkinson’s?

A MyParkinsonsTeam Member asked a question đź’­
A MyParkinsonsTeam Member

Parkinsonism is suppose to be worse than just PD. It is more involved with your movement mobility, so they say...

posted November 20, 2023

Does Anyone Else Have Such Vived Dreams And Talk, Scream Or Holler Out In Your Sleep? Does It Wake You Or Your Wake Your Spouse?

A MyParkinsonsTeam Member asked a question đź’­

My husband told me this morning that I screamed out so loud last night that our neighbors could have heard me. I don't remember dreaming about anything. Usually, when I dream, it will wake me up or I wake myself up talking or screaming. Kind of scary but have a neuro appointment on Monday and will discuss it then.

A MyParkinsonsTeam Member

Yes, my wife says I kick my legs and swing my arms. She does not wake me up. She does move away from me!

posted 23 hours ago

Weight Problems

A MyParkinsonsTeam Member asked a question đź’­

I have lost a lot of weight in the last month. I am having problems swallowing at times and feel full fast so am not eating as much as I should. I have found I have to stay away from alot of Protien as it interferes with my medications. Has anyone else noticed a large weight drop?

A MyParkinsonsTeam Member

I hope so too for your good

posted October 14, 2023

The Doctor Diagnosed My Husband With Parkinsonism? Does Anyone Else Have That?

A MyParkinsonsTeam Member asked a question đź’­
A MyParkinsonsTeam Member

My husband was told by one doctor that it was Parkinsonism from a bad fall. He is treated the same as Parkinson's. It is very hard to find information that separates the difference of the two.

posted March 26

Likes And Hugs

A MyParkinsonsTeam Member asked a question đź’­

Am I the only one who has lost the ability to do a thumbs up or hug/heart or did they announce another change and I missed it? I miss being able to respond to people's posts quickly. If it is a general change, I suppose the idea is to force people to make actual comments rather than just do simple reactions, but I liked being able to like and hug posts when I didn't have anything helpful to say.

A MyParkinsonsTeam Member

We got this Phil

posted December 17, 2023
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