Parkinson's disease

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Looking back, when do you think your first Parkinson’s symptoms started? What were they?

Looking back, when do you think your first Parkinson’s symptoms started? What were they?

When did you first become aware that something wasn't right? Looking back what were your first symptoms?

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A MyParkinsonsTeam Member said:

I was lucky to be recommended by a friend to a local neurological physiotherapist, who I have seen twice a week for the last year. I have a programme of… read more

posted 15 days ago
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In your experience what causes your Parkinson's to flare up, or your symptoms to worsen?

In your experience what causes your Parkinson's to flare up, or your symptoms to worsen?

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A MyParkinsonsTeam Member said:

@A MyParkinsonsTeam Member - I think you are finding the same thing that was brought to my attention - change starts with when WE take the first step… read more

posted 4 months ago
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Have you discovered any ‘life hacks’ that make your day to day living with Parkinson’s any easier?

Have you discovered any ‘life hacks’ that make your day to day living with Parkinson’s any easier?

What are the best tips of simple things you were able to do, or adjustments that you were able to make, that helped make an everyday task easier?

(A life hack is something small that you do to make life easier, for example using liquid soap so you don’t drop bar soap, or putting a satin sheet on your bed to make it easier to turn over.)

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A MyParkinsonsTeam Member said:

I have found nozzles for my hoses that have an on/off valve instead of having to squeeze the handle when the muscle tension is hurting. I love to garden… read more

posted 2 months ago
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How does the time of day affect a person with Parkinson's?

How does the time of day affect a person with Parkinson's?

What is 'sundowning'?

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A MyParkinsonsTeam Member said:

Sundowning is a term that describes a person whose personality y changes as the sun goes down and its for the worse is changes to

posted 5 months ago
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What do you wish your partner understood about what living with Parkinson's is like?

What do you wish your partner understood about what living with Parkinson's is like?

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A MyParkinsonsTeam Member said:

My spouse tries to understand but he doesn't have Parkinsons b ut lets me talk and I have girlfriends and they have different problems fro me b ut were… read more

posted 8 months ago
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