How Many Out There Have Parkinsonism? Do You Know The Difference Between Parkinsonism And Parkinson's? | MyParkinsonsTeam

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How Many Out There Have Parkinsonism? Do You Know The Difference Between Parkinsonism And Parkinson's?
A MyParkinsonsTeam Member asked a question đź’­
A MyParkinsonsTeam Member

I have Parkinsonism, symptoms came on really fast whereas Parkinson's progresses slowly over the years.

Mine also caused my arthritis to speed up so I am now dealing with neck, back, knee and feet… read more

posted February 14
How To Overcome Fatigue, Anxiety And Poor Sleep
A MyParkinsonsTeam Member asked a question đź’­

I have been diagnosed with parkinson since 2007. I had mild case of parkinson. Recently Simnet does not work well. I have Anxiety out of nowhere and yes my personal life is not causing me Anxiety. I should as I am by profession psychologist. I have lot of fatigue and even though I continue to exercise I remained fatigue. any one can recommend what anti-anxiety med they take
Thank you everyone, and have a happy and healthy new year

A MyParkinsonsTeam Member

FinleyFox here. Last several months I developed insomnia due to my 6 years of PD. Also, having sleep apnea didn't help. My Neurologist recommended a mild 50mg generic sleep aid to help me sleep… read more

posted August 24, 2022
Memory Problems.
A MyParkinsonsTeam Member asked a question đź’­

I am having a lot of problems talking lately . I will be talking and forget a simple word and can't think of it. Friends will add the word for me. I also can't follow conversation when people are talking to with a long story.This is happening more frequently. I only been dignosed a yr ago. Is anyone have this problem and what are you doing for it ?

A MyParkinsonsTeam Member

I agree with Kathy unless, like me, there is a deeper problem called aphasia. You might talk to your doctor, and if he sees no physical problems, you might follow Kathy’s advice.

posted September 2, 2023
Scientific Support For The Long-Term Safety Of Levodopa Use.... What Does Your Neurologist & You Believe ?
A MyParkinsonsTeam Member asked a question đź’­

Despite proven effectiveness and wide use of levodopa, usually prescribed as Sinemet® (carbidopa-levodopa), to manage movement symptoms in PD, doubts have lingered over the drug’s long-term safety. Research published Oct 11, 2011 in the journal Neurology, scientists conclude that larger cumulative doses of levodopa, taken for years or decades, do not harm critical brain cells in people with Parkinson’s.

The long-term use of levodopa is associated with dyskinesia and “wearing-off” periods in… read more

A MyParkinsonsTeam Member

Thank you Allan for your post. I have a problem taking Carbidopa/Levodopa- it does not seem to affect my motor symptoms plus the fact that I was diagnosed with MSA. I still take 1-2 tablets (25/100)… read more

posted September 3, 2016
Would You Get DBS Again?
A MyParkinsonsTeam Member asked a question đź’­

If you have had DBS surgery, is it something you would do again knowing what you know now?

A MyParkinsonsTeam Member

Thank you so very much Patrick. Sorry to hear re: incision/scar placement and bumps of the caps used to cover the electrodes. Good to know. I agree ahead of time. I think these people see so many… read more

posted May 29, 2023
In Layman’s Terms, Is Parkinsonism Worse Than Parkinson’s And Is The Prognosis Of It Worst Than Parkinson’s?
A MyParkinsonsTeam Member asked a question đź’­
A MyParkinsonsTeam Member

Parkinsonism is suppose to be worse than just PD. It is more involved with your movement mobility, so they say...

posted November 20, 2023
Does Anyone Else Have Such Vived Dreams And Talk, Scream Or Holler Out In Your Sleep? Does It Wake You Or Your Wake Your Spouse?
A MyParkinsonsTeam Member asked a question đź’­

My husband told me this morning that I screamed out so loud last night that our neighbors could have heard me. I don't remember dreaming about anything. Usually, when I dream, it will wake me up or I wake myself up talking or screaming. Kind of scary but have a neuro appointment on Monday and will discuss it then.

A MyParkinsonsTeam Member

My husband laughs, yells, kicks and talks in his sleep. It wasn’t safe for me to sleep in same bed. I’m not sure how he does now as I am in another room.

posted January 16
Weight Problems
A MyParkinsonsTeam Member asked a question đź’­

I have lost a lot of weight in the last month. I am having problems swallowing at times and feel full fast so am not eating as much as I should. I have found I have to stay away from alot of Protien as it interferes with my medications. Has anyone else noticed a large weight drop?

A MyParkinsonsTeam Member

I hope so too for your good

posted October 14, 2023
The Stages Of Parkinson’s Disease Progression In Parkinson’s Disease That Are Defined In Stages.
A MyParkinsonsTeam Member asked a question đź’­

Parkinson’s disease impacts people in many different ways. Not everyone will experience all of the symptoms of Parkinson’s, and if they do, they won’t necessarily experience them in quite the same order, or at the same level of intensity. Even so, there are typical patterns of progression in Parkinson’s disease that are defined in stages.

You might hear your doctor refer to your Hoehn and Yahr stage. This scale, first introduced in 1967, is a simple rating tool used by clinicians as a means to… read more

A MyParkinsonsTeam Member

These stages in the uk are known as 1 mild 2 moderate 3 complex 4 advanced 5 end of life you can also go up in 1/2 stages ie 2.5 to 3 and the rate of progression does not change.

posted July 20, 2017
How Come So Few PWP In The US Know About Thiamine Therapy.
A MyParkinsonsTeam Member asked a question đź’­

Thiamine HCI (vitamin B1) therapy has been a game changer for me and instrumental in reversing many of my symptoms. It's quite popular in Italy, where pharmaceuticals are not always the first approach used for treatment.

At 4 weeks of 2000 mg daily, Thiamine HCI these are the benefits I have experienced
• improved balance almost normal.
• relief from constipation.
At 8 weeks of 2000 mg daily of Thiamine HCI
• swift movement instead of slow motion.
• ability to get up from a chair or out of… read more

A MyParkinsonsTeam Member

I am treated with B1 for five years plus. It saved me from much disability

posted December 1, 2023
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