How Come So Few PWP In The US Know About Thiamine Therapy. | MyParkinsonsTeam

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10355 questions
How Come So Few PWP In The US Know About Thiamine Therapy.
A MyParkinsonsTeam Member asked a question 💭

Thiamine HCI (vitamin B1) therapy has been a game changer for me and instrumental in reversing many of my symptoms. It's quite popular in Italy, where pharmaceuticals are not always the first approach used for treatment.

At 4 weeks of 2000 mg daily, Thiamine HCI these are the benefits I have experienced
• improved balance almost normal.
• relief from constipation.
At 8 weeks of 2000 mg daily of Thiamine HCI
• swift movement instead of slow motion.
• ability to get up from a chair or out of… read more

A MyParkinsonsTeam Member

I am treated with B1 for five years plus. It saved me from much disability

posted December 1, 2023
The Doctor Diagnosed My Husband With Parkinsonism? Does Anyone Else Have That?
A MyParkinsonsTeam Member asked a question 💭
A MyParkinsonsTeam Member

My husband was told by one doctor that it was Parkinsonism from a bad fall. He is treated the same as Parkinson's. It is very hard to find information that separates the difference of the two.

posted March 26
False Hope ?
A MyParkinsonsTeam Member asked a question 💭

Morning MPT (my profiterole team) no it's not Parkinson's it's profiterols today, we're doing some baking but first I heard this on the radio this morning and it got me thinking (doesn't take much)

Nothing's gonna change my world
Nothing's gonna change my world

The repeated line in the chorus is a simple meditation affirming that no one, or nothing, is gonna ruin Lennon's joy and happiness.

Not quite the intended closing chapter John had hoped for me thinks........

Don't put your hope in… read more

A MyParkinsonsTeam Member

Yes & Amen.

posted March 24
I Have No ?? Just Wanted To Say I Miss Summer Already,swimming Helps Me A Lot
A MyParkinsonsTeam Member asked a question 💭
A MyParkinsonsTeam Member

Swimming helps me a lot too!

posted August 13, 2023
Has Anyone Been Reading Up On The Two New Drug Therapies For PD?
A MyParkinsonsTeam Member asked a question 💭

I had mentioned the drug before which was a one pill slow release Amantadine which is called Gocovri, which is being used to treat dyskinesia It has been approved by the FDA. It is for those who experience side effects from amantadine now have another option. The second drug is Exenatide, a medication used to manage diabetes. Primary outcome was an improvement in motor symptoms and may slow the progression of PD. All information was taken from the Parkinson Report Fall/Winter issue just in… read more

A MyParkinsonsTeam Member

Is that the CBD form?

posted March 9, 2020
Are PDers Afraid To Take Sleeping Pills? If So, Why?
A MyParkinsonsTeam Member asked a question 💭

I hear so many Parkinson's patients complain about not being able to sleep. They may be able to fall asleep but wake up and just lie in bed and are unable to go back to sleep. This happens night after night. No sleep or not enough sleep cuts deep and can cause health issues.

What is it about sleeping pills that cause apprehension and resistance? Is there something to fear about taking a pill to sleep? Let's discuss this issue. Sterling

A MyParkinsonsTeam Member

Great post Pepen. This will help a lot of people.
Thank you.

posted October 27, 2023
I Think I'm Developing A Condition Called Dysphagia - Swallowing Disorders. It's Apparently Fairly Common With PD, And Can Contribute
A MyParkinsonsTeam Member asked a question 💭

to development of aspirational pneumonia, the leading cause of that-which-I-try-not-to-dwell-upon. My questions 1) Anyone know if there is a treatment? 2) Prevention is in this case better than a cure, so can anyone recommend ways to keep from breathing in chunks of food? I understand speech therapists sometimes have success.

A MyParkinsonsTeam Member

So happy for u all with experience with speech these Blless u all and prayer for u all! My exponent have came to lif after so much age difference .I believe prayers are powerful God Bless u alll! Love… read more

posted March 22
Challenging Current Views On Origins Of Parkinson’s Fly Models Of Parkinson’s Disease Point Way To New Therapies
A MyParkinsonsTeam Member asked a question 💭

Challenging Current Views on Origins of Parkinson’s June 23, 2016 >> http://neurosciencenews.com/parkinsons-origin-n...

The neurodegeneration that occurs in Parkinson’s disease is a result of stress on the endoplasmic reticulum in the cell rather than failure of the mitochondria as previously thought, according to a study in fruit flies. It was found that the death of neurons associated with the disease was prevented when chemicals that block the effects of endoplasmic reticulum stress were… read more

A MyParkinsonsTeam Member

I found some hope: "If you know you have been exposed to pesticides, the lactic acid bacteria formed during the fermentation of kimchi may also help your body break down pesticides. So including… read more

posted January 15, 2018
Can A Person With PD Suddenly Not Be Able To Stand, Walk, Or Speak Clearly?
A MyParkinsonsTeam Member asked a question 💭

I was told it could be a "flare", but the PD Foundation claims that "flares" are a myth. My Dad went through a hospitalization with CAT scan, EEG, MRI, LP to r/o encephalitis. They didn't find any brain diseases or vitamin deficiencies. The only thing I could think of was a TIA that didn't show up on the MRI. The sudden onset really has me puzzled. We had 4 neurologists look at Dad with very little info. to give us. Any suggestions?
Thank you in advance, Tedi

A MyParkinsonsTeam Member

I had a stroke just before last Christmas; that one showed up; the 2nd one didn’t but it was diagnosed based on symptoms.

posted October 7, 2023
DANGEROUS INFLAMMATION
A MyParkinsonsTeam Member asked a question 💭

Do You Know That INFLAMMATION Is the number One Cause of Disease? What to do? Fight and
reduce the inflammation with many kinds of Anti-Oxidants...such as Curcumin (curry) and Pippin (black pepper) View the attached website for more information.

http://www.webmd.com/vitamins-and-supplements/i...

A MyParkinsonsTeam Member

I’m adding more to my husbands diet & thank you!

posted October 19, 2020
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