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How Does Your Furry Friend Make Life With Parkinson's Better?
A MyParkinsonsTeam Member asked a question 💭
A MyParkinsonsTeam Member

Mountain woman I am sad that this precious dancing dog wasn’t given to you. You obviously love her/ him. But I’m sure you take comfort knowing she is in a better home than her previous unappreciated… read more

posted December 17, 2023
End Stage Of Parkinson Help
A MyParkinsonsTeam Member asked a question 💭

My mum is in the end stage of Parkinsons. The doctors have now taken her off most of the medication she was on as they say that because she has had Parkinsons for almost 22 years the medications do not work as they should. I could do with talking to others that have had or know someone that has had Parkinsons for this length of time. I'm so worried at the moment as last week mum was put on another drug to help keep her calm its called Trazadone but it has made her even worse she has been like a… read more

A MyParkinsonsTeam Member

Sandy, some injections are given in the calf and others in the feet

posted January 9
Have You Heard Of Strategic Light Therapy For Parkinson's Disease?
A MyParkinsonsTeam Member asked a question 💭

I wonder how many of us are aware of the success that light therapy is showing in the treatment of PD? It seems to me that, on the whole, this is not yet common knowledge. Here are some background science papers [just copy-paste the title into google and it should come up with the links to them]
Timed Light Therapy for Sleep and Daytime Sleepiness Associated With Parkinson Disease
A Randomized Clinical Trial
Circadian dysregulation in Parkinson's disease
A historical justification for and… read more

A MyParkinsonsTeam Member

I’m not on a computer or iPad before bed. I can get to sleep by 10:30 - 11 pm I wake up between 1 & 3 am when I start the day. I don’t nap during the day. I need more sleep. Ugh

posted May 2, 2022
Focused Ultrasound Treatment For Parkinson's - Trials In Thalamotomy (tremor Dominate) And Pallidotomy (dyskinesia Dominate)
A MyParkinsonsTeam Member asked a question 💭

Focused ultrasound is a completely non-invasive way to perform the lesioning procedure described above without exposing the patient to potentially harmful ionizing radiation. Using this treatment modality in conjunction with image guidance, the physician directs a focused beam of acoustic energy through the patient’s scalp, skull, and brain to thermally coagulate a small area of the brain, thereby destroying targeted tissue without damaging nearby tissue or the tissues through which the beam… read more

A MyParkinsonsTeam Member

I had the ultrasound procedure last October. It eliminated tremors on my right side! However, my balance seemed to get worse. I am using a walker (hate it) and want to get back to walking! Advice?

posted May 31, 2023
FDA Releases First Drug For Parkinson's Called Nuplazid For Parkinson's Psychosis.
A MyParkinsonsTeam Member asked a question 💭
A MyParkinsonsTeam Member

Thank all of you
U

posted May 21, 2016
Can Smart Shoes Help The Elderly And Disabled Walk ?
A MyParkinsonsTeam Member asked a question 💭

Smart shoes help the elderly and disabled walk By: Anthony Cuthbertson - Newsweek - Thursday, March 17, 2016

New high-tech shoes and insoles have been developed that can help elderly, ill and disabled people walk without fear of falling over.
Unveiled at the Wearable Technology Show in London on Tuesday, the Path Feel insoles and Path Finder shoes from U.K. startup Walk With Path provide tactile feedback and visual cues to assist walking.

“If you walk and you don’t have a good… read more

A MyParkinsonsTeam Member

Maye you could use white tape. instead of paint

posted March 28, 2016
How Does The Cold Affect Your Parkinson's?
A MyParkinsonsTeam Member asked a question 💭
A MyParkinsonsTeam Member

Heck yes...cold weather invites a lot of aches and pains all over...but remember we all suffer differently. That's PD...

posted 14 minutes ago
What Has Helped You Get A Restful Night's Sleep With Parkinson's?
A MyParkinsonsTeam Member asked a question 💭
A MyParkinsonsTeam Member

For me, I have asleep schedule, that’s pretty early in the evening. We eat dinner about 5 so I try to be done with eating anything before 530 PM. Then I take my last meds for the day and I will try… read more

posted 5 hours ago
Handwriting Difficulties
A MyParkinsonsTeam Member asked a question 💭

Ugh, I'm really just venting. I had to write an important number down and of course, when I needed it, I could not read it.

Does anyone else have this annoying problem?

A MyParkinsonsTeam Member

voice activation on phone and computer has saved my husband who has this problem

posted March 22, 2022
Vision Changes In Parkinson's
A MyParkinsonsTeam Member asked a question 💭

As we grow older, it is normal to experience age-related eye problems. These changes usually have nothing to do with Parkinson’s. If you are having vision problems, it is important to visit an ophthalmologist first.

Vision Changes in Parkinson’s

There are some vision changes that may be due to Parkinson’s or medications for PD
•Double vision can occur due to medications or because the eyes have trouble working together, also called convergence insufficiency. Special prism glasses can… read more

A MyParkinsonsTeam Member

Alan, that’s a very professional article. Did you write it? Are you an ophthalmologist ?

posted July 13, 2021
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