Parkinson's disease

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Extreme paranoia as side effect of Carbidopa?

Extreme paranoia as side effect of Carbidopa?

Newbie here. At a loss of how I can help my family. My father has been on Sinemet for months-- taking the pills makes life "kind of" worth living again, but the negative side effects are beginning to take a toll. He is very paranoid and jealous, accusing his spouse of cheating. It's becoming so difficult for her, who does nothing but love him and take care of him at the expense of her own mental health. She tries to explain to him that this is a side effect of the… read more

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A MyParkinsonsTeam Member said:

Sometimes the moods are extreme. The paranoia of someone breaking in or following her( 2 assaults and 2 breaking) jealous when husband talks to other… read more

posted about 2 hours ago
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Does Melatonin work for sleep?

Does Melatonin work for sleep?

This is just something that happened to me which I would like to share. I sleep terrible at night usually going to bed at 12 and waking at 3:30-4:00 a.m. I tried the melatonin gummies which someone recommended. I tried them but they did not seem to work at all for me. But since I loved the taste I took them for three months and after about three months they finally worked. I could not believe it. Now I am going to bed at 11:00 and waking at 7:30 each morning. If I need to use the… read more

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A MyParkinsonsTeam Member said:

My daughter takes hemp bombs and they do help her

posted 1 day ago
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Does anyone experience bad pains in all their joints after sitting or sleeping?

Does anyone experience bad pains in all their joints after sitting or sleeping?

Was wondering if this is related to PD or something altogether different. After sitting down for long periods of time either watching tv or eating at a restaurant and especially getting out of bed in the morning, I have terrible pains in all joints. I look like I am 104 years old getting out of bed in the mornings. Does anyone know if this is a symptom of PD?? Bean

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A MyParkinsonsTeam Member said:

My daughter suffers from painful joints and also has dystonia. The cbd and hemp bombs help her

posted 1 day ago
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Medication

Medication

Due to my off times I was taking Carbidopa levodopa and stelevo 150 every 2 hours. For some reason I get squinting in my face when the medication wears off which is kind of painful can I don't know if that happens 2 anyone else. Well I've been taking the medication for to every 2 hours 4 months now and had a lot of swelling in my left leg. I weaned off of the Carbidopa levodopa and just take this to the150 stelevo now swelling is completely gone away but now I have such low blood pressure i pass out… read more

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A MyParkinsonsTeam Member said:

Very good, serious point SarahM. Appreciate that important detail, this type of Disease progresses differently in all of us, so what meds work for one,… read more

posted 9 days ago
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focused ultrasound

focused ultrasound

This is a relatively new procedure which provides similar relief as DBS. Has anyone had this done? What results? Is it safe?

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A MyParkinsonsTeam Member said:

In 2016, Forbes Magazine carried an article on MR-guided Focused Ultrasound (MRgFUS) for essential tremor (ET). Citing positive results from clinical… read more

posted 9 days ago
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Anyone else diagnosed with early onset Pd?

Anyone else diagnosed with early onset Pd?

I was curious how fast symptoms came on

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A MyParkinsonsTeam Member said:

@ Maddies - I agree entirely with what you have said - I was diagnosed in October 2006 having been to my GP first who poo pooed it! . In the end my… read more

posted 9 days ago
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Do you more tremor, muscle ache, negativity or insomnia with Rytary?.

Do you more tremor, muscle ache, negativity or insomnia with Rytary?.

Since starting Rytary I have had more freezing, muscle aches,tremor, and negative thoughts. Anyone else?

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A MyParkinsonsTeam Member said:

don't know why all those random letters and numbers went with my message.

posted 11 days ago
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How come my doctor isn't treating me for Noh

How come my doctor isn't treating me for Noh

I have discussed my symptom and he just doesn't respond to me about trying to help me with my Noh that and fatigue are my worse symptoms

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A MyParkinsonsTeam Member said:

What does NOH stand for? Vickie

posted 9 days ago
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