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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Are Other Parkinson's Patients Suffering From Severe Vasovagal Syncope Syndrome As They Lost Leg Muscles And Strength?
A MyParkinsonsTeam Member asked a question 💭

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posted 2 days ago
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A MyParkinsonsTeam Member

hi charlie........happy thursday! you must be a mind reader--i may have similar issues with my legs. i walk along (with a walker) and my thighs burn and my legs buckle. does any of this sound… read more

posted 13 hours ago
Do Other Caregivers See Cognitive Decline In Themselves?
A MyParkinsonsTeam Member asked a question 💭

Worried about my high anxiety and decision making. Do other caregivers see cognitive decline in themselves? How are you handling it? Thanks.

posted 2 days ago
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A MyParkinsonsTeam Member

Monique
I don’t know you age or anything else about you except that you have the kindest heart and your priority is always to do your very best for your husband. I am not an analyst or a doctor but… read more

posted 4 hours ago
Husband Has NO Strength In His Legs And Can't Swing Them Onto Or Off The Bed. He Throws Himself Off The Bed To Get Out. Any Devices?
A MyParkinsonsTeam Member asked a question 💭
posted 2 days ago
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A MyParkinsonsTeam Member

My husband grew depressed and stopped walking or exercising his legs. I told him it is use it or lose it! He did not listen and now can barely stand or walk. Due to losing all the muscle strength and… read more

posted 2 days ago
I Will Start Taking Vitamin B1. Hopefully It Will Improve My Stamina. Have Anyone Tried B1?boast My Energy
A MyParkinsonsTeam Member asked a question 💭
posted 2 days ago
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A MyParkinsonsTeam Member

Exhaustion understood! Psyllium Husks and. Stool softeners work too. Metamucil contains psyllium husks. but you can just take tablets which come in a higher dose.

I am afraid to add too much… read more

posted 2 days ago
I Will Start Taking Vitamin B1. Hopefully It Will Improve My Stamina. Have Anyone Tried B1?boast My Energy
A MyParkinsonsTeam Member asked a question 💭
posted 2 days ago
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What Vitamins Or Supplements Do You Take? Do They Help?
A MyParkinsonsTeam Member asked a question 💭
posted 3 days ago
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A MyParkinsonsTeam Member

I take B12, and a Womens multi vitamin and magnesium daily.

posted 4 hours ago
Is There Anyone That Can Recommend A Neurologist Or Behavior Analyst In The Akron Ohio Area ???
A MyParkinsonsTeam Member asked a question 💭
posted 3 days ago
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Has Anyone Used The App NeuroRPM?
A MyParkinsonsTeam Member asked a question 💭

I‘ve been reading about an app for Apple Watches called NeuroRPM. It’s been approved by the FDA. I wondered if anyone was using the app or new anything about it. I ordered an Apple Watch and I hope it’ll be here this week. I’d like to try it if it’s worthwhile.

posted 3 days ago
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Earlier This Month I Read An Internet Pitch Regarding Stemcells. Today I Heard A Pitch From The Stemcell Co. And Asked Questions.
A MyParkinsonsTeam Member asked a question 💭

I am curious to know what others have done researching such treatment. Have others used stem cells? Because I also have Atrial Fibrillation, I asked how stem cells may heal my heart, also. A well known (Hollywood) personality has touted the benefits from stem cell treatment. I am not mentioning any names at the time of this posting. Skepticism is my first reaction. I know of no one who has had the treatment for Parkinsons. I have had acquaintances in the past that have had stem cell… read more

posted 3 days ago
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A MyParkinsonsTeam Member

i think you should speak to your doctor about this. i keep hearing that everyone is different when it comes to PD. is atrial fibrillation the same thing as a-fib? if so, a cousin of ours has that… read more

posted 3 days ago
Does CBD Provide Any Meaningful Pain Relief, Reduce Tremors, Improve Strength, Etc.?
A MyParkinsonsTeam Member asked a question 💭

If the answer to any of the above is that CBD helps, what is the best source? Is it expensive? Covered by Medicare?

posted 3 days ago
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A MyParkinsonsTeam Member

Nothing is covered, other than very traditional treatments that have been the same for 40 years, frustrating!!!

posted 22 hours ago
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