Parkinson's disease

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4 medium

Anyone switch to timed released levodopa/carbidop?

What was your experience?

posted 5 days ago
A MyParkinsonsTeam Member said:

I've been on the extended release since diagnosed in July of 2018. My neurologist did not prescribe the extended release formulation but the pharmacy… read more

posted about 4 hours ago
9 medium

Has anybody had good results with the PD Warrior exercise program?

posted 6 days ago
A MyParkinsonsTeam Member said:

On my, not "ony"

posted 4 days ago
6 medium

How do I clear my info n close this account?

posted 6 days ago
A MyParkinsonsTeam Member said:

https://myhealthteams.freshdesk.com/support/sol...-

Select the menu icon in the upper right corner (to the right of your picture), Go to 'Settings' then… read more

posted 4 days ago
8 medium

Cycling cadence and resistance

Hi, I just got a Peloton bike this week and am apprehensively looking forward to getting the most out of it. Cycling was something my neurologist suggested. I have never been a cyclist, but I am determined to do all I can to slow the progression of my PD. ( I will ride everyday also because it cost a small fortune!) I was wondering if anyone else cycles, and if so, do you know what resistance is necessary supposed to be beneficial? I have read many places that the cadence needs to… read more

posted 6 days ago
A MyParkinsonsTeam Member said:

I only do a stationary bike at times at the gym, and mainly do treadmill. Was told to only ride stationary ones after a back fusion, then had a cervical… read more

posted 4 days ago
9 medium

Bad blood sugar rise on L-dopa

started L-dopa for 3 days.I am Type 1 Diabetic..My blood sugar went thru the ROOF
and insulin response was totally wacky.

Have quit the l-dopa and BS has normalized.
Any way to deal with this nasty side-effect of the med.?
thanks dale in B.C.

posted 7 days ago
A MyParkinsonsTeam Member said:

WEll, we have almost free medical coverage here i pay around $1100/yr...hence my remark about free medical......but us old folks are jammin up the… read more

posted 4 days ago
1 medium

Anyone knowledgeable about chiropractic neurologists?

I am wondering if anyone with PD has seen a chiropractic neurologist and, if so, did they find it helpful?

Here is a explanation of this type of provider - https://www.youtube.com/watch?v=YACylTKNrqE

edited, originally posted 7 days ago
A MyParkinsonsTeam Member said:

I box twice a week and it helps immensely with my PD

posted 6 days ago
3 medium

Has anyone tried REMfresh instead of Melatonin for better sleep?

4 mg of REMfresh was suggested by my Dr. in a recent Sleep Study. I'm waking up more awake and 'refreshed' after 2 nights of trying it, but local pharmacies don't carry it. Does anyone know where to get REMfresh?

posted 7 days ago
A MyParkinsonsTeam Member said:

Try Amazon, maybe they can help in USA

posted 7 days ago
1 medium

Please share any experience with a voice amplifier.

posted 7 days ago
A MyParkinsonsTeam Member said:

I need that info too thanks

posted 5 days ago
4 medium

Is anyone experiencing rough wearing off periods while on levadopa/carbidop? What do you do to help during this time?

posted 8 days ago
A MyParkinsonsTeam Member said:

oh yes OFF PERIODS!!! I have had freaking P.D. for 18 years!! I have been taking Madopar for 3 years after taking Sinemet for 12 years (the first 3… read more

posted about 17 hours ago
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