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Parkinson's disease

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Do Others Have Tremor In Jaw, Teeth, Tongue?

Do Others Have Tremor In Jaw, Teeth, Tongue?

Should mouth guard work to stop biting tongue and/o r cheek in sleep?
Getting $500 guard from dentist Monday.
Will Insurance reimburse if PD doc writes Rx?
Dentist doesn't think so
Ideas?

A MyParkinsonsTeam Member said:

I would call my insurance or Medicare and see if they pay for it. If not send a letter of appeal and a copy of your prescription. Pick up the Drs note from your appointment. They say no appeal again.

posted 6 days ago
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Has Anyone Tried Using The Oculus To Help With Motor Coordination/;agility?

Has Anyone Tried Using The Oculus To Help With Motor Coordination/;agility?

I'm interested in trying but can find no current references on its therapeutic benefit for exercising? There is no local PD PT team in my area and I thought this could be a good alternative. The PD Warrior program looks interesting but is rather pricey.

A MyParkinsonsTeam Member said:

I've been doing Qigong and Tai chi, some of the moves I can't do, like up on my toes for very long on my right leg. I love the tapping on the body. I try to do 2 or 3 videos a day. I also do 40 reps… read more

posted 7 days ago

New “symptoms “?

New “symptoms “?

Ok I don’t post much but read all I can. My symptoms are progressing it seems at an accelerated pace in the last couple years.

This past week has been tough to just get out of bed. I have no energy or motivation but always have been able to push through. Not Sunday. I woke, showered, ate breakfast and hit a wall. I ached all over could hardly move. Went back to bed and stayed all day. Woke Monday and back to normal. Is this a new thing to look forward to???

Thx for reading.

A MyParkinsonsTeam Member said:

Happens to me. Always a surprise. Next day I’m fine.

posted about 2 hours ago

Tell Me About Freezing

Tell Me About Freezing

A MyParkinsonsTeam Member said:

I do not freeze when I walk but when I go from sit to stand and vice versa as well as when Iattempt to bend over.. My neurologist says this unusual
.
Interested in hearing from others

posted 9 days ago

The Toes On My Left Foot Are Swelling And Twisting. The Podiatrist Doesn’t Seem To Know Why.

The Toes On My Left Foot Are Swelling And Twisting. The Podiatrist Doesn’t Seem To Know Why.

The toes were numb and tingling for a couple of months before the swelling started. They are not sensitive to touch but sometimes they feel like they are going to burst and then they really hurt. My neurologist thinks i may have nerve damage but I can’t get a test to find out until December.

A MyParkinsonsTeam Member said:

I don't know anything a out acupuncture except the only treatment I received combined it with E-Stim, or, Electrical stimulation. pretty sure you have experienced it before since it is a mainstay of… read more

posted 4 days ago

Has Anyone Noticed Aggressive Behavior With Parkinson's?

Has Anyone Noticed Aggressive Behavior With Parkinson's?

Like slapping someone's hand away and being just cantankerous, argumentative, and flat refusal of aid?

A MyParkinsonsTeam Member said:

I've already lost my mind, so I have nothing to worry about. I know bad time for a joke, but we need to laugh now because we don't know what tomorrow will bring. Yes, I do worry about dementia, I… read more

posted about 18 hours ago

Is There A Way To Search The Prior Questions For Topics Of Interest?

Is There A Way To Search The Prior Questions For Topics Of Interest?

I only see lists that are pre-picked, but I'm missing it, if there's a search bar.

A MyParkinsonsTeam Member said:

To the left of the bell? My screen doesn't have a magnifying glass there in Fiirefox. I tried MS Edge and it's not there either. Huuummm.

Oops, found it. It's on the Q&A page not on the profile page… read more

edited, originally posted 10 days ago

Smell Test - Is It Used By Any Doctors?

Smell Test - Is It Used By Any Doctors?

I discovered research that smell reduces in nearly 85% of people before diagnosis. Yet that isn't used or tested for. Smell can be reduced for other reasons. But my smell seems normal. It's unclear yet if I have PD or maybe vacscular PD or maybe something else (I've had drugs for lymphoma). Is the lack of reduced smell a good sign that maybe I don't have regular PD?

A MyParkinsonsTeam Member said:

So your smell is still in tact. Good luck getting this nailed down. Thanks for the info :).

posted 8 minutes ago

Can You Stop Or Slow Your Tremor By Thinking For The Muscles To Relax?

Can You Stop Or Slow Your Tremor By Thinking For The Muscles To Relax?

What does that mean for a diagnosis? I may have PD or Vascular PD or Essential. Doctor's aren't sure yet. Will get first DapScan results tomorrow.

A MyParkinsonsTeam Member said:

Besides moving it, can you get it to slow down or stop by thinking for the muscles to relax?

posted 5 minutes ago
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