Parkinson's disease

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Can you soppliment Stalevo with regular 25/100 carbo/levoq?

Can you soppliment Stalevo with regular 25/100 carbo/levoq?

I think it was someone on my team that mentioned taking Stalevo and mb entioned they supplimented it wth 1 or 2 regular 25/100 pills at night. Can you mix Stalevo with reg carbo/levo? Since we went to daylight savings time (Ug) i need to take my Stalevo at 7:00am instead of 8. So my last dose runs out about an hour- to a-1/2 earlier and that makes it hard to go to sleep. If I took 1/2 or one regular 25/100, i think it would help. Thank you… read more

A MyParkinsonsTeam Member said:

Your response was extreemly helpful! I was on Rytary but i could not deal with it's inflexibility. My new neurologist has me on 6-7 pills a day. He said… read more

posted 19 minutes ago

How do you manage to track your “off” times?

How do you manage to track your “off” times?

It has been made very clear that it is important to be able to track when your meds are “off” so it can be reported to your doctor at your next visit. This information is then used to calculate any changes that need to be made to your meds and dosages in order to keep your PD symptoms at a minimum with little to no “off” periods. I am not good at doing this. I wondered how you all manage this task. How do you keep track? Do you have trouble “reading” your body’s… read more

A MyParkinsonsTeam Member said:

@A MyParkinsonsTeam Member, that is great! I’ve heard a lot of good reports about successful DBS operations. I’m so glad for you and know you are… read more

posted 2 days ago

Calibrace+ Back Brace

Calibrace+ Back Brace

Has anyone used Calibrace+ by AbiliLife? This is a back brace developed for PD to help posture and was featured in a newsletter from Davis Phinney Foundation. Did you find it helpful and did Medicare help pay for it?

A MyParkinsonsTeam Member said:

Not yet.

posted 9 days ago

New to meds havent got to talk to Doctor yet

New to meds havent got to talk to Doctor yet

New to meds was wondering if carb/Levi helped everyone with tremors and if it is working on me
I have severe neck and shoulder pain/ stiffness and legs like trying to walk in quick sand without meds all is better while on meds except tremors but only last about 5 hours just wondering don't see Doctor until next month

A MyParkinsonsTeam Member said:

You 5 hour period may be an indicator that is when your last dose has worn off. Maybe your doses need to to be adjusted to different times. Mine are at… read more

posted about 3 hours ago

Format of site

Format of site

Can l sort posts and comments so I can see those since I last read?

A MyParkinsonsTeam Member said:

Thank you so much for your helpful response. I will be exploring all the options you gave. Again, thanks!!

posted 12 days ago
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