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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
11168 questions

When I Take My Rytary I Can't Walk But If I Am Walking I Am Ok?

A MyParkinsonsTeam Member asked a question 💭
A MyParkinsonsTeam Member

I recently switched from Sinemet to Rusty because the sinemet was not working. How long will I have to wait to see some results. It’s been about a week. ?

posted 3 days ago

When To Increase My Dose Of Levidopa?

A MyParkinsonsTeam Member asked a question 💭
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member

"When your Dr says so mine told me to increase When I thought I needed to but I've been taking them since 2016"

My doctor told me the same, word for word Les. That was… read more

posted 4 days ago

How Do I Submit My Responses? I Don't See Any Instructions.

A MyParkinsonsTeam Member asked a question 💭
A MyParkinsonsTeam Member

Hey handsome

posted 4 days ago

I Have Increased Tremors After Exercise Anyone Else?

A MyParkinsonsTeam Member asked a question 💭
A MyParkinsonsTeam Member

I don't have resting tremor, only when my hands are moving. I do a lot of big hand movements, and my arms are shaking all over the place while I exercise, but if I push through it for 40 min or so the… read more

posted 8 hours ago

When Does Memory Loss Start In A Person With Parkinson?

A MyParkinsonsTeam Member asked a question 💭
A MyParkinsonsTeam Member

I can't remember is it age or Parkinson

posted 4 days ago

I Have Mild Parkinson’s But I Do Get A Lot Of Muscle Pain Anyone Else Have That And What Do You Take For It

A MyParkinsonsTeam Member asked a question 💭
A MyParkinsonsTeam Member

Hi Lorraine
I have found the level of muscle pains and cramps and also how I feel mentally are all directly related to the amount of exercise I have, rather than any extra medication. My modopa etc… read more

posted 5 days ago

Ketamine. Yale Is Doing A Stugy On Ketamine For Parkinson's, And I'm Considering It If I Can Arrange The Logistics... Comments, Anyone?

A MyParkinsonsTeam Member asked a question 💭
A MyParkinsonsTeam Member

BettyMaciolek...Check with your treating doctor before you go...Good Luck...🤠

posted 5 days ago

What Amount Of Sinemet Is Typical

A MyParkinsonsTeam Member asked a question 💭
A MyParkinsonsTeam Member

I agree Ginny. I take 2 pills 3 x daily. And I have been on it for 5 years.

posted 5 days ago

I Find I'm Getting Dizzy A Lot Lately. Does Anyone Else Have This Problem?

A MyParkinsonsTeam Member asked a question 💭

As it is, I have other things that make me faint & I tend to fall so this is not helping me at all

A MyParkinsonsTeam Member

I suffer the same, the other day it was particularly hot and I thought I'm so dizzy, my head is spinning like a whirlpool it never ends and then the next day it's not so bad ? I just hope Tommy Roe… read more

posted 5 days ago (edited)

Why Doesn't The Medical Field Know More About Parkinson's In General

A MyParkinsonsTeam Member asked a question 💭

I was rushed to the hospital for what appeared to be a stroke. My husband was the one to figure out it was my Parkinson's. Him and 1 lone paramedic. Don't get me wrong, a stroke is Serious!!! KNOW the SIGNS !!! However the level of knowledge in the medical field is sadly lacking. From the importance of medication timing and or medication available. We don't all have a masked face, we don't all have a pronounced tremor, we are all not older men.

A MyParkinsonsTeam Member

Anyone ever have or hear of nOH or neurogenic Orthostatic Hypotension. I had it fourteen years, with lots of bruise, before I answered a questionnaire I found on Facebook. Turned out I said yes on… read more

posted 3 days ago
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