Parkinson's disease

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How do I delete my online account? Thanks.

How do I delete my online account? Thanks.

as indicated

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A MyParkinsonsTeam Member said:

Hi all, just wondering whether anyone has tried cold laser therapy to manage symptoms and what how helpful it was.
Thanks

posted 15 days ago
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Staring

Staring

I have a question about staring for long periods of time in Parkinson’s patients. My father (age 78) has had Parkinson’s for the past 11years. He now lives with me and I’m his caregiver. I’ve noticed that at dinner time, he kind of “zones out” and stares out the window for a very long time. It takes him upwards of 2 hours to finish his dinner! He is oriented to time and place, but continues to gaze out the window. It’s difficult to re-direct him. Anyone else experience something like this? Does it sound… read more

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A MyParkinsonsTeam Member said:

It has happened to my partner with PD often. Have you looked at his face? Does he look like your dad when he's fully present? My guy looks different,… read more

posted 9 days ago
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How do you deal with family frustration?

How do you deal with family frustration?

My sons can’t understand my symptoms of PD and the doctors’ misdiagnosis from MS to hydro encephalitis then PD. They think I have hysteria and mislead my doctors. I tried to educate them about neurological degenerative diseases symptoms, diagnosis and treatments because I believe in being an informed patient and would like to have their understanding. However, I was unsuccessful and one son even refused to hear about it anymore since I didn’t listen to him who “knew” that… read more

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A MyParkinsonsTeam Member said:

I had 2 out of 3 adult sons that were in denial. But when hallucinations and falling became an extreme issue they finally took off the rose colored… read more

posted 4 days ago
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Fatigue, malaise, extreme exhaustion!

Fatigue, malaise, extreme exhaustion!

Is exhaustion a Parkinson's symptom? I have stuff I really want to do but the fatigue & listlessness stops me cold.

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A MyParkinsonsTeam Member said:

I'm with you Tom, but then I"m an OLD sob. Hang in there man the alternate is much worse!

posted 1 day ago
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Loss of balance

Loss of balance

So my father has parkinsons and we have noticed he loses balance a lot. Falls down slowly.
We don't really know what to do and how to help him further with this. He does have a cane and a walker and I bought him an apple watch so it can alert us if he falls. I just think things like putting on his shoes are going to be really difficult given its hard for him to get up. Just really difficult to see, we try to help as much as we can. I don't live at home however he is with my mom who helps as much… read more

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A MyParkinsonsTeam Member said:

you can get floor mts that soynd alarm when he gets out of bed...sorry if that was mentioned........then you know when hes roaming.........

posted 12 days ago
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Muscle Fatigue

Muscle Fatigue

My question regards muscle fatigue. I find that my leg muscles are unnaturally fatigued after several minutes of exercise. I’ve always had exceptionally strong legs and now I cannot get my mail without them feeling like pudding . It is a common experience ?

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A MyParkinsonsTeam Member said:

But exercfise cis the key! Don't give in to these minor sety backs, keep moving at all costs!

posted 1 day ago
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No questions, just a sugestion to live with a very positive attitude.

No questions, just a sugestion to live with a very positive attitude.

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A MyParkinsonsTeam Member said:

I have the book, Every Victory Counts, by the Davis Phinney Foundation. It is full of info and uses a positive approach. It's free, only the cost of… read more

posted 6 days ago
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Medical marijuana

Medical marijuana

I have been taking medical marijuana for about 6 months now, starting at a low dose and gradually increasing until you reach the
level that gives you the most relief.
My cbd oil is given to me by a doctor under prescription and so far I have not felt ant relief that would be considered great.
I keep asking my doctor for an increase but he tells me start low and go slow but I guess what I comment on is what constitutes

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A MyParkinsonsTeam Member said:

I am with OSU medicine under the tobacco tax I have no insurance have been denied by disability for 2 years I had a hearing May 7th of this year don't… read more

posted 13 days ago
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Question about selling house and moving

Question about selling house and moving

I'm trying to plan for the future. I'm considering selling my house and moviǹg to an adult apartment complex. My house is a modest 3 br home and I would be moving initially to an independent living area, either a studio or 1 be apartment. I'm very familiar with the community because my step mom that I cared for was there and she was happy. The independent area is very affordable and for a small fee you can get housekeeping a couple of times a week. There's a restaurant… read more

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A MyParkinsonsTeam Member said:

@A MyParkinsonsTeam Member Could this be an An Advance Directive (Living Will) and not a Power of an Attorney? I have both, and they are so different.… read more

posted 9 days ago
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