Parkinson's disease

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6 medium

Gdnf how do they measure hope

Gdnf how do they measure hope

This is written by a researcher and a parkinsons suffer

http://jonstamford.com/2019/03/17/gdnf-where-now/

how important are these report to us, do they make you feel better or would you rather not know

posted 6 days ago
9 mini
A MyParkinsonsTeam Member said:

the more info the better....bring it on !! :)

posted 4 days ago
3 medium

I do have a question on how do deal with my husbands moods and ignoring me it is very distressing

I do have a question on how do deal with my husbands moods and ignoring me it is very distressing

posted 6 days ago
1 mini
A MyParkinsonsTeam Member said:

My husband has hsd PD for about 14 years but managed it well until about 9 months ago. Now he is a different person altogether. Sometimes he can be… read more

posted 2 days ago
8 medium

I am very interested in DBS, but I currently have a pacemaker which causes issues. Anyone else dealt with this?

I am very interested in DBS, but I currently have a pacemaker which causes issues. Anyone else dealt with this?

My cardiologist placed the pacemaker in the right side of my chest which apparently is not the usual choice. There is also a conflict between pacemaker and the MRI used during the DBS process. Does this eliminate me from being DBS worthy?

posted 7 days ago
6 medium

Does anyone here have Vascular Parkinson-ism? Its symptoms that are Parkinson LIKE but not really Parkinsons?

Does anyone here have Vascular Parkinson-ism? Its symptoms that are Parkinson LIKE but not really Parkinsons?

The final diagnosis for my Mom is vascular dementia and
Vascular ParkinsonISM, and periventricular leukomalacia. {think Cerebral Palsy in newborn babies}

The dr said that it is from a lifetime of heavy drinking, heavy smoking, and high cholesterol. You have to have all three for an MRI brain scan to look that way. NONE of which my mom had or did. I'm just wondering if anyone else has had these symptoms and… read more

posted 7 days ago
8 mini
A MyParkinsonsTeam Member said:

Yes Jeff, exposure to toxic chemicals, meds that block dopamine receptors, brain trauma, and some others that can trigger parkinsonism...

posted about 22 hours ago
4 medium

Body temperature going up at certain times of the day

Body temperature going up at certain times of the day

I have been noticing that around 6pm every day, I have been having a sudden surge in body temperature, where I get "hot" for no apparent reason. Does anybody else get this?

posted 8 days ago
4 mini
A MyParkinsonsTeam Member said:

Yes me too.

posted about 21 hours ago
6 medium

disability

disability

Can anyone recommend an attorney in the southeast pa area? Media, west Chester? Need to research our options for disability / early retirement.

posted 9 days ago
7 mini
A MyParkinsonsTeam Member said:

Check with large hospitals close to you. I was blessed to have found an attorney that represents Parkinson’s patients connected to Parkinson’s support… read more

posted 9 days ago
7 medium

Has anyone had to deal with PD psychosis?

Has anyone had to deal with PD psychosis?

After 15 years of PD medications, I'm experiencing (as a caregiver) my wife having hallucinations of people that don't exist. Now, she is questioning me about when are we going home...when, in fact, we are at home. We are working with PD doctor introducing a new drug (Nuplazid) to help with the hallucinations. Has anyone used and experienced good or bad reactions to this medicine?
I'm brainstorming.....any thought is a good answer.
Praying God's blessings on us all as we… read more

posted 9 days ago
5 mini
A MyParkinsonsTeam Member said:

Thanks so much

posted 3 days ago
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