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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Do You Or Your Loved One Follow A Specific Diet To Help With Parkinson's?

By A MyParkinsonsTeam Member 147 answers

Are You Frustrated With Finding Effective Treatments For Parkinson’s?

By A MyParkinsonsTeam Member 120 answers

How Does The Cold Affect Your Parkinson's?

By A MyParkinsonsTeam Member 186 answers

What Parkinson's Symptoms Keep You Up At Night?

By A MyParkinsonsTeam Member 375 answers
12227 questions

Does Carbidopa Levodopa Disagree With Any Of You? It Seems To Make My Tremors To Act Up After I Take It, I Do 25/100 Three Times Aday. I

A MyParkinsonsTeam Member asked a question 💭
Woonsocket, RI
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member - that's scary.

My husband sometimes has stomach issues with the c/l. When his doctor increased the dose from 8 x 100 mg to 4 x 250 he started throwing up. She told him to… read more

November 22

Where. Is Nigel? I Wrote A Long. Response But It Didn't Post Because Itv Exceeded 3000 Characters. Made Me Angry. Thinking Of You Andrea

A MyParkinsonsTeam Member asked a question 💭
Pitman, NJ

I will try again tomorrow. I won't forget. Try again tomorrow. 😴 Andrea

A MyParkinsonsTeam Member

You have a good attitude

November 17

My Husband Has Occasionally Mentioned Suicide, About Once Or Twice A Month But Seems More Frequently Lately. Is This Typical? Is Therapist

A MyParkinsonsTeam Member asked a question 💭
Haymarket, VA

A good addition to his team of doctors?

A MyParkinsonsTeam Member

Depression is common with PD. PD is an incurable progressive degenerative disease, so it is understandable that people are worried or afraid about the future. Therapy or medications may help. Focusing… read more

November 14
Hi, this is just a check-in, based on a phrase you mentioned. If you — or anyone else who sees this — is thinking about self-harm, we want to say that you are an important part of this community. No part of this is easy, but there is support that can help. Read more >
Hi, this is just a check-in, based on a phrase you mentioned. If you — or anyone else who sees this — is thinking about self-harm, we want to say that you are an important part of this community. No part of this is easy, but there is support that can help. Read more >

W What Are The Best Shoes For Walking With Parkinsons?

A MyParkinsonsTeam Member asked a question 💭
Shorewood, IL
A MyParkinsonsTeam Member

I love Skechers - lots of color choices, good solid fit.

November 14

W What Are The Best Shoes For Walking With Parkinsons?

A MyParkinsonsTeam Member asked a question 💭
Shorewood, IL
A MyParkinsonsTeam Member

I have orthotics to aid with a foot that always rolls to the outside and the other foot with the results of a bunion. Altra wides followed by Merelle wides are my go-to when out walking.

November 24

My Husband Has Parkinsons Where Can We Go To Get A P.D. Gene Study In Chicago Illinois?

A MyParkinsonsTeam Member asked a question 💭
Chicago, IL

My husband was diagnosed with PD in 2017 and recently we were told that he has dementia Lewy Bodies - we need to get him into a gene study for the sake of our children and grandchildren
Our primary Neurological team is at Unniversity of Chicago and they do not offer gene study testing.
Thank you,
Diana & Raymond

*Warning* *possible Distressing Content* Trying To Get A Definitive Answer On Degeneration Of Parkinson's And Failure Of L-Dopa...

A MyParkinsonsTeam Member asked a question 💭
Stoke-on-Trent, UK

...and it seems harder to get a straight answer than you'd think.

I've had Parkinson's since 2015. Got on the L-Dopa early, so probably coming up on 8-9 years.

I can't say I really "suffered" with it until the last three years or so, but all the research I CAN find says that L-Dopa failure is somewhere in the 5-10 year range...so I'm pretty much spot on.

But as I live alone I'm looking for more detail on "what happens next"; which I realise is going to be hard and likely second-hand. The grim… read more

A MyParkinsonsTeam Member

Nigel2 - My symptoms are very similar to yours. I have burning legs all night long, and sometimes they feel heavy as lead. And sometimes I feel weakness all over my body, which makes it scary to walk… read more

November 16

Whjat Is Medication Known As Cl

A MyParkinsonsTeam Member asked a question 💭
Santa Barbara, CA
A MyParkinsonsTeam Member

Carbidopa-levodopa. It's the most common medication given to people with Parkinson's.

November 12

Has Anyone Also Had Hyperparathyroidism? It Is A Dysfunction Of Calcium Metabolism; Ie. That Is Hyperparathyroidism, Not Hyperthyroidism.

A MyParkinsonsTeam Member asked a question 💭
Pitman, NJ

The hyper "parathroidism " is not the same as hyperthyroidism . The 4 parathyroid tiny glands control calcium metabolism. ?

A MyParkinsonsTeam Member

I have to take Thyroid medicine. The same as listed above. I don't have to take the calcium yet though.

November 14

Has Anyone Had Significant Weight Loss Before Or After PD Diagnosis? Weight Loss Without Trying To Lose Or Diet?

A MyParkinsonsTeam Member asked a question 💭
Pitman, NJ
A MyParkinsonsTeam Member

Yes. I lost 25 lbs. Without trying.

November 18
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