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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
10447 questions
What Can I Do About Cramping In My Hands & Feet?
A MyParkinsonsTeam Member asked a question 💭
A MyParkinsonsTeam Member

200 mg/ day

posted 7 days ago
What Is The Best Way To Control NOH?
A MyParkinsonsTeam Member asked a question 💭

Hubby with PD struggles with standing or walking. BP can drop 40-80 points systolic. He uses a waist binder, thigh high stockings, and takes midodrine. He also has a wheel chair that reclines. Is there anything new to control nOH?

Has Anyone Had Any Experience Good Or Bad With ENTACAPONE? My Doctor Prescribed It To Me To Take With My Carbon Levodopa.
A MyParkinsonsTeam Member asked a question 💭
Why Doesn't PD Literature Mention PiD Or SS?
A MyParkinsonsTeam Member asked a question 💭

Serotonin Syndrome being acknowledged has Radically changed the nature of my PD, as has over-medicating.

A MyParkinsonsTeam Member

This is big pharma at its finest perhaps, but more likely doctors using meds without being certain of what they are treating? Maybe all kinds of reasons. I’ve had a PCP years ago who every year took… read more

posted 7 days ago
How Do I Definitely Know If I Have Parkinson’s And Not Something Else?
A MyParkinsonsTeam Member asked a question 💭

Vague DAT scan.

A MyParkinsonsTeam Member

That's what I always tell my son wn he makes dinner, pls give me a small portion, if I want more, I'll take it, bcs sometimes, if I see too much food on the plate, I don't even want to eat.

posted 7 days ago
What Do Others Take For Pain
A MyParkinsonsTeam Member asked a question 💭

leg pain

A MyParkinsonsTeam Member

I can't take ibuprofen or Tylenol or aspirin (it turns my skin purple) I will say THC was the only thing that worked for pain. I hv other issues that cause pain too

posted April 27
How Thgyyy
A MyParkinsonsTeam Member asked a question 💭
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member Very good, all things considered 🙂 how's life ?

posted April 27
Does Anyone Take Glantamine?Does It Clear Your Head?
A MyParkinsonsTeam Member asked a question 💭

Dr says my pd is mild & wants me to take glantamine. I havent picked it up yet

I Sent In An Issue With My Wife.. Having A Pain In Her Hip / Thigh Area And Not Being Able To Mover Her Leg Because The Leg Is Moving
A MyParkinsonsTeam Member asked a question 💭

Finally the leg will move and she can take a few steps.. I believe I know the answer - but is this Parkinson's /?? If you see that i repeated the question please forgive me as I did not say it all the first time.. t ks....

A MyParkinsonsTeam Member

Robin... Have not been able to pin point this issue.. But the swelling is there also... it comes and goes and what you listed may be the answer.. Tks JD

posted April 28
What Other Drugs Are Available To Help With Freezing
A MyParkinsonsTeam Member asked a question 💭

I, taking carpodopa / levodopa every 2.5 hours but itnstill wears off sooner I can’t use inbrija,is there any other medication

A MyParkinsonsTeam Member

I take Apokyn it’s like a adrenaline shot works great with me

posted April 27
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