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10558 questions
Medication Timings; L-Dopa And Entacapone.
A MyParkinsonsTeam Member asked a question 💭

The advice is to take the two together. But should that change if the L-Dopa is a controlled release variant rather than "normal" release?

A MyParkinsonsTeam Member

Sorry I can’t help Nigel. Speak to your doctor or a pharmacist

posted May 6
How Many Of You All Drooling Symptoms? If I Didn't Have A Beard It Would Look Pretty Obvious.
A MyParkinsonsTeam Member asked a question 💭
A MyParkinsonsTeam Member

I too droll, especially at night. Lately it has started during the daytime. I don't have a beard, so all I can do is wipe it off! Have a great dayand hang in there!

posted May 5
Prescription Meds Are Only Lasting About 3 Hrs. Research On The Web Doesn't Help On Whether Or Not To Decrease Dosing From 4 Hrs To 3 Hrs.
A MyParkinsonsTeam Member asked a question 💭
A MyParkinsonsTeam Member

I agree with Wanda ask your doctor. I have to take 11/2 every 4 hours

posted May 4
I Have A Cold Right Now With A Cough I Can't Get Rid Of Anyone Else Have A Hard Time Getting Over Simple Colds While Having Parkinson's?
A MyParkinsonsTeam Member asked a question 💭
A MyParkinsonsTeam Member

I'm usually really healthy....I only get life changing stuff, you know the kind, Epilepsy, Parkinson's, that kinda stuff. I don't usually don't get colds. I'm a constant hand washer....however...I… read more

posted May 8
Most Frustrating Is Not Knowing When Parkinson’s Will Keep Me From Activities And Friends.
A MyParkinsonsTeam Member asked a question 💭

Major problem is sudden exhaustion.

A MyParkinsonsTeam Member

I’m thankful to read responses speaking of having to cancel engagements due to fatigue. I was beginning to think I was getting lazy or antisocial.

posted 5 days ago
Anyone Try PS128 For Your PD?
A MyParkinsonsTeam Member asked a question 💭
A MyParkinsonsTeam Member

What is PS128?

posted May 4
Is Anyone Taking Probiotics For PD? Please Let Me Know Which And How You Like It, Thanks?
A MyParkinsonsTeam Member asked a question 💭
A MyParkinsonsTeam Member

I have no experience of this. Will follow info sent to you

posted May 5
What Kind Of A Bed Do You Have? We Are Thinking Of Buying An Electric Hospital Bed For J. Truthfully, I Don't Know Where To Start.
A MyParkinsonsTeam Member asked a question 💭

The Friday after Valintine's Day J. ended up in the hospital. He was in a rehab
Hospital for 2 weeks. He really got a work-out. 4 hours a day of exercise
and speech classes. ( stretched out over the whole day) This hospital is new
and we were taught a lot about J getting stronger. They sure do not like
lift-chairs!!! I sure wish I would have had this training two years ago. I wish we would have been exposed to this sooner. J. also suffers with RLS. He manages
to get about 5 hours of… read more

A MyParkinsonsTeam Member

Check out Parkinsons Place out of Saratoga FL for online Rock Steady Boxing a few times a week. It is a great workout and FREE although I will give periodic donations.

posted May 4
Does Anyone Know Anything About Akathisia?
A MyParkinsonsTeam Member asked a question 💭
A MyParkinsonsTeam Member

Here’s a link that explains it quite fully.

https://my.clevelandclinic.org/health/diseases/...

posted May 3
Just Looked At Today's Survey- May 2. You Missed One Of The Most Debilitating Symptoms- Fatigue!
A MyParkinsonsTeam Member asked a question 💭
A MyParkinsonsTeam Member

Pain, pain, pain.
Since my joints are not arthritic per say, it is more like a terrible lightning storm of pain. Hips and lower back were/are constantly in a vice.

posted May 3
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