People living with Parkinson’s disease may experience sleep troubles in many different ways. For some, insomnia, or difficulty sleeping, begins after symptoms such as tremor or stiffness develop. For others, sleep trouble is one of the earliest signs of Parkinson’s, sometimes showing up years before tremor or slowness.
However your nights have changed, you’re not alone, and you have options. Once you understand what’s disrupting your sleep, you and your doctor can start targeting the problem and working on the right solution.
Sleep problems in Parkinson’s rarely come from a single cause — instead, they usually stack on top of each other. Nighttime muscle symptoms, mood changes, a frequent need to urinate, and shifts in your brain’s own sleep-wake system can all play a part.
Nighttime tremor, rigidity (stiffness), and dystonia — muscle contractions that cause the body to twist or cramp — often flare up after you lie down, making it harder to fall asleep or stay asleep. These nighttime motor symptoms happen in more than 60 percent of people with Parkinson’s.
Parkinson’s also damages brain regions that control when you feel alert or drowsy, including several structures deep in the brainstem. That’s different from motor symptoms interrupting your rest — it means the disease itself is reshaping how your brain manages sleep.
Your body’s internal clock can shift too. Dopamine, the chemical messenger that Parkinson’s disrupts, also helps regulate your circadian rhythm, the roughly 24-hour cycle that tells your body when to sleep and when to wake.
Anxiety, depression, and nighttime bathroom trips often pile on top of these physical changes. Treating all contributing factors can ease your sleep problems.
Left untreated, chronic insomnia can affect more than your energy levels. It may worsen motor symptoms such as stiffness and slowness, as well as nonmotor symptoms related to mood and thinking. Over time, poor sleep may contribute to irritability, trouble focusing, memory problems, and added stress.
Doctors sort insomnia into three types, and Parkinson’s can cause any of them.
In Parkinson’s, sleep-maintenance insomnia and early-morning awakening tend to be more common than trouble falling asleep. Knowing which type you have can help your doctor decide the next step, since a treatment aimed at falling asleep faster won’t necessarily fix waking up too early.
One sleep problem sometimes gets confused with insomnia, but it needs its own approach.
REM sleep behavior disorder, or RBD, causes people to physically act out their dreams. During normal dream sleep, your muscles go still, but that doesn’t happen with RBD, so you might punch, kick, shout, or even fall out of bed.
The condition is common in people with Parkinson’s and related brain diseases, and it can be dangerous for you or a bed partner. Doctors typically treat it with melatonin or clonazepam (an anti-anxiety medication) to help prevent injury.
RBD can show up years, or even decades, before other symptoms. That makes it one of the earliest possible clues that changes are happening in the brain, well before tremor or stiffness set in.
If you or someone who shares your bed has noticed unusual movement or shouting during dreams, mention it at your next appointment.
Dopaminergic medications, which are used to treat the motor symptoms of Parkinson’s disease, can have complicated effects on sleep. Higher doses of these medications are linked to a greater risk of excessive daytime sleepiness.
At the same time, carbidopa-levodopa can improve sleep. In one study, people with Parkinson’s who added an extra dose of a levodopa-based combination medication at bedtime fell asleep faster, woke up less often, and reported better overall sleep after three months.
The type and dosing schedule of your medications may be contributing to your insomnia. This includes antidepressant and cognitive-enhancing medication. If you think your treatment is affecting your sleep, bring it up with your neurologist. Don’t change the timing or dose on your own.
Alongside medical treatment, small daily habits can add up to real improvements in how well you sleep. Some strategies include:
Talk with your neurologist if insomnia lasts more than a few weeks, interferes with your daily life, or comes with unusual nighttime movements.
A sleep specialist can help identify possible causes of your sleep problems, including obstructive sleep apnea (a sleep disorder in which the airway repeatedly becomes blocked). In some cases, they may recommend an overnight sleep study, called polysomnography, to evaluate your sleep more closely.
Getting an accurate picture of the problem makes it much easier to land on a treatment that actually works for you.
Get updates directly to your inbox.
I have trouble turning over in my bed at night. I get stuck. It feels like I'm being pushed down into the mattress. Any suggestions?
Become a member to get even more
This is a member-feature!
Sign up for free to view article comments.
I can relate to all of this in some way!! I have had problems with my hair breaking off so I cut it shorter only to continue to my utter huge sadness with it still breaking off! however, I have had… read more
We'd love to hear from you! Please share your name and email to post and read comments.
You'll also get the latest articles directly to your inbox.