How do you explain Parkinson's to your friends and family? Do you think they understand?
I discovered an excellent, and FREE, brochure available through the National Parkinson's Foundation. I ordered several of these and made sure my husband, two adult daughters and a few of my friend who help me out a lot received them. If anyone asks, I always refer them to the internet. Since I don't have the very obvious tremors like Michael J. Fox, it's easier sometimes to have them read about it than have me tell it. I must say that I am a disabled RN, and I never knew much about PD. I try and educate everyone, including my doctors, what MY version of the disease is.
@A MyParkinsonsTeam Member, it is amazing to me to see how many of us share so many of the same issues. I use a cane and wear my leg brace all of the time I am out of bed. Chest tightness is a bitch and I also have my wheelchair when it is too much to walk. Eating out can be interesting because I have so many problems eating. What a wonderful group we are becoming.
i was going to call my family together but then i just told then one by one and i made it sound like it was no big deal i said im like a ping pong ball bouncing off walls i said it will get worst as time goes on and that i have no worries that i was good with it and that it is a challenge a challenge that i was ready to take on
a friend who has Parkinson's and her daughter wrote/created a comic for sharing with friends. It's free please take a look https://issuu.com/drawnoutthinking/docs/louise_...
Order whatever printed materials that you can---most are free. There is even a kit you can order that explains PD and precautions that must be used with our care. I have it--it's from the National Parkinson's Association.