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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyParkinsonsTeam Member asked a question 💭
Bryant, AR

I want to find a doctor who can wean my husband off all the drugs and try the amino acid therapy. Can anyone recommend someone? I'm very interested.

October 3, 2015
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Reactions
A MyParkinsonsTeam Member

Becky--you sound just like me! I wish you lived down the street! I can't even go sit on the porch or take the yard because he needs me inside. He has a back issue that makes sitting very hard for him--so that adds to the misery. Ron is stubborn too! I worry all the time about falling and another trip to ER.

October 24, 2015
A MyParkinsonsTeam Member

i just started a dew days ago under dr. Enescu's guidance. my side effects from traditional medications r very bad.

October 29, 2016
A MyParkinsonsTeam Member

Ron would curl up and die in a nursing home and so I constantly try to figure out what we can do. There are specialized PD care homes in some states but costs are over $100,000 a year. Lately I'm afraid he is nitcsafexwithbme--when I can't move him and so on. I worry about the shower--he won't use a chair and so we just have one grab bar. I stay right with him but no in reality he could fall before I could blink. Ron's world has become so small and that is depressing. We used to be on the go all the time. We both get cabin fever.

October 23, 2015
A MyParkinsonsTeam Member

Becky--do you all talk about the future and what will happen when you no longer can care for him at home? That's what I worry about.

October 20, 2015

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