How do you explain to friends/family when you have to cancel an engagement?
I know it hard: My husband can tell whether if I feel up to going, he see it in my face. Like church try to make sure my medicine are already taken at least an hour before leaving and take extra with me . I have a slanted footstool I leave at church to prop my feet on so I can moved them however I need to and keep a shawl over my lap. My problem is when leaving we get in middle of peoples I feel like I cant move, so My husband I found what would be comfortable. He take me by the arm and guide me thru the crowd . Family gathering. I have to think ahead and stay active and just go just be prepare to handle your situation Let someone know if u have a problem just set up a signal like if u tap them on the back and u keep going they should follow you to help u overcome what ever the problem is.this has work for me. its just that you feel more comfortable at home .Hope this help
Well your family and friends should know what your situation is like in some evening are my worse 2 to 5pm I try to take a shower close to 5 and make sure I took my 4pm medicine an hour before the social engagement.I went to a Cousins gathering Labor Day, I enjoyed myself except for a couple of spells one was a choking spell, I had slump down forgot to keep my straight up. Then I got restless so I just took off with my walker and walk up and down the road my sister put me in her car to cool me off. And the rest I got to enjoy myself still. Just be prepared to handle it .
We have really just stopped going places--it's too stressful for my husband and me for that matter. He cannot sit for very long--has to walk. Once he's in a seat he can't get up without lots of pulling on my part. It makes him self conscious in public places--eating is really hard too as he drops and drops food.
At diagnosis 6 years ago, we informed family and close friends and asked for prayers of healing. Our friends being aware of day-to-day feeling good or 'off days' are more understanding of his condition. I always keep a day's supply of medications with me in my purse, my husband also keeps one set with himself - so he will not miss the medications while away from home. this works so we are able to stay out longer.
The most problem I have with this is that my restless legs sometime out of the blue attack so I just walk and walk up and down the road or their hallway You need to write down what is it that keeping me You may have more than one jot it down Now write down what can I do to overcome this problem. Get someone to talk about it and see what solution would be. Or last of all do you really want to go? Am I more comfortable at home? We really need to socialize with others.
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