Your Answers: The Worst Parkinson's Advice (Infographic)

Posted on November 13, 2016

We asked and you answered! We posted this question: What bits of "advice" do you wish people would stop telling you? and hundreds of you took the time to respond.

What did we learn? From the unconcerned ("It can't be that bad") to the plain unhelpful ("At least it's not cancer"), advice is hurled at us from friends, family, coworkers, even strangers. While most suggestions are probably well-intentioned, hearing them over and over can make us feel that our condition is minimized and misunderstood.

Some of the most common answers we heard:

  • It’s can’t be that bad
  • At least it’s not cancer
  • Don’t let it define you
  • God doesn't give you more than you can handle
  • You don't look like you have Parkinson's
  • Look carefully where you're going
  • Just hire someone...

Everyone's situation is different and not all of these apply to each person. Tell us: What advice about Parkinson's do YOU wish people would stop telling you?

A MyParkinsonsTeam Member said:

I’m obviously not OK as l’m in a wheelchair and struggling to walk. I’m sure people mean well but l wish they wil wait for me to tell them how I am.

posted 7 days ago

hug (3)

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