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Stalevo
A MyParkinsonsTeam Member asked a question 💭

Stalevo

posted November 12, 2015 (edited)
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A MyParkinsonsTeam Member

I agree. I have less nausea with Stalevo. It does seem to last longer. My new neurologist refuses to increase my dose. He wants to add other meds such as the Nupro patch even after I told him I am med sensitive. I think I am going to change to another neurologist because I don't like doctors who think they have all the answers and refuse to listen to the patient.

posted November 21, 2015
A MyParkinsonsTeam Member

Since my DBS surgery was activated on Dec. 12th 2022, I have had great results!
My speech is much improved!
My C/L has been reduced to 1-1/2 pills 4 times a day!
My hand to eye coordination has improved greatly!
I can write my name again! Haven’t been able to do that for several years!
Improvement in my balance!
My dysconisa is much better!
The +’s outweigh the -‘s so I’m happy with that!
Overall, my wife and I are very pleased with the changes after only 3 visits of programming!
I have a 4th programming on March 7th! It is not exact science yet but it is working & it will take time to get where I want to be! PD is progressing faster now so I’m not sure if we’ll be able to catch up, but I’m okay with that as long as my quality of life has improved and PD stays in check like it is right now I’m one happy camper

posted February 9, 2023
A MyParkinsonsTeam Member

I have had DBS since 2014 it gave me a good life but on the last year it has taken toll with my voice I am illegiball and I get fustrated as when ii am in a social setting especially if there is music or a full restaurant I can’t join in the conversation when
I go to friends for dinner they often stop the conversation to let me say what I want to say they listen carefully and if I am illegible my husband or one of my friends repeat what I have said I use to embaraced

posted August 8, 2023
A MyParkinsonsTeam Member

Lance
How long have you had PD
20 pills a a day seems like a lot
My husband has had PD for about 18 years he got the DBS about 12/2014
He takes 4 C/L a day so the DBS has worked well for him
His problems now are excessive saliva
Voice and he can no longer write
And he uses a walker
So I’m not sure if these things are caused by PD or if they have anything
To do with the DBS a good question to ask the doctor when we go on the 27th
Hope you can find what works for you
PD sucks so we can only take one day at a time but always keep rinformed
As new things are coming out every day

posted February 7, 2023
A MyParkinsonsTeam Member

How did the DBS work for you?

posted October 12, 2022

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