Parkinson’s disease impacts people in many different ways. Not everyone will experience all of the symptoms of Parkinson’s, and if they do, they won’t necessarily experience them in quite the same order, or at the same level of intensity. Even so, there are typical patterns of progression in Parkinson’s disease that are defined in stages.
You might hear your doctor refer to your Hoehn and Yahr stage. This scale, first introduced in 1967, is a simple rating tool used by clinicians as a means to… read more
That's great @A MyParkinsonsTeam Member.... Education is the key to living with Parkinson's.... like @A MyParkinsonsTeam Member mentioned earlier to you, it's not to scare / frighten us... but to help enlighten us to where our journey with PD can take....
I truly believe the secret to obtaining the best Quality of Life with PD, is being able to tame the Dragons of depression, stress, anxiety, and apathy.... it is so critical to those with PD, because when those symptoms are left unchecked.... and spiral out of control, so does the ugliness of Parkinson's negative symptoms.
I believe that more education is needed about when our brain becomes chemically imbalanced, which is really the root cause of depression, stress, anxiety, and apathy which are truly illnesses / diseases.... This can happen when our bodies are suggested to intense long term exposure to stress - be it real or imaginary. Personally I've been challenged with this for over 30+ years... and have found my peace and well being with a cocktail of meds that I still use the exact same now that I have PD with excellent results...
I think that people with these symptoms know there is help available and can make a world of difference for them, and a much better Quality of Life... It should be looked upon as a disease, that require constant monitoring and appropriate medication such as Diabetes... or similar disease.
Good luck with your Support Group Meeting an admire you becoming a beacon of hope for others, Alan
I agree Lyn took a copy of Alan's information with me yesterday as I had a lot of questions I wanted answers for and was able to get most of them answered he was inpressed with the relationship we have with each other and is going to look up the website and see for himself how we talk and d answer each other and the encouragement we offer to each other, Hope you are having lots of good days my fingers all]]re all thumbs at the moment Pam
@A MyParkinsonsTeam Member, don't think about losing your freedoms. Us Parkies just tend to have to depend on others for things like transportation earlier than others. I gave up my Driver's License on my own when I realized I didn't trust myself. I couldn't really feel where my right foot was and I had a hard time going from accelerator to brake. I didn't want to kill anyone, so I just figured others could take over. And guess what? I have friends fighting over driving me places! I used to be one of the drivers and now I am a "drivee"---how do you like that name? I just now made that up! Have some fun with it. I found some chauffeur pins that I gave my husband and friends and when I put out a request for help, I always say "anyone available for driving Ms. Peggy ?" With every "freedom I have had to give up, I am not always happy about it, but it sure is nice to know that people really want to help! They often don't know what they can do for us. Find some humor in your days. Have your pity parties. But don't let them fill up your entire day. Hope today is a good one for you!
Attitude is everything! It is what it is so we must go on and be strong and live life to the fullest!
It's a good ruler for functioning ability and a cruel reality check. I'm somewhere between Stage Two and Stage Three. But I resent this disease and I'm not going down without a fight and it won't be pretty. I fight it every day with fierce determination.