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Learn The Basics Of Non-motor Symptoms Of PD And What You Can Do
A MyParkinsonsTeam Member asked a question 💭

Parkinson’s disease is generally thought of as a disease that only involves movement. But in addition to so-called motor symptoms such as slowness of movement, tremor and stiffness, most people develop other health problems related to Parkinson's. These symptoms are diverse but are collectively known as non-motor symptoms.

It’s important to realize that non-motor symptoms are common and can be more troublesome and disabling than motor symptoms. That’s why you should watch for these symptoms and… read more

posted January 16, 2016
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A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member
Denise, your comments about apathy are on the button!

There's a loss of interest, a lack of motivation or energy in daily activities that were, at one time, a priority or cause of some excitement. I find that I face this on many days. I used to scold myself for not getting something, or anything, done in a day. Now I give myself permission to let it go if I don't feel like doing it with the hope of more motivation tomorrow. That has worked better for me.

Thanks for sharing!

posted January 17, 2016
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member,

I totally agree with @A MyParkinsonsTeam Member, I'm very fortunate too that the Gold Standard for treatment of Parkinson's in Generic Form works great for me... No weird side effects... just wonderful relief, at a exceptional low cost....

In some ways, a lot of people have been "programed" by large drug companies, that makes, Billions of $$$ in pure profit,,,, be "teaching" us to say NO to Generic Drugs !! With all the misinformation and preconceived notions / ideas that shared by advertising and "friends" with just enough info to be dangerous.
That intentionally frightens the general public into thinking - ALL Generic drugs are BAD....

As you are aware our Medicare / Self Insurance is pushing back with greater intensity due to the ballistic $$$$ increase, randomly being raised... just because... For myself, with limited resources, I need to be / think smarter then the average "Bear" if I'm to continue experience a high Quality of Life with Stage 3 PD...

Each PD patient is unique in their reaction to generic versus prescription medications. Only you, alone, know best, and at least give it a chance to work, before splurging for the highest cost drug, that is likely a minor tweak to the typical Gold Standard of care for Parkinson's,,,, Alan

posted June 1, 2016
A MyParkinsonsTeam Member

What a wonderfully informative posting that has made me think a lot more clearly. I honestly had never heard the term, non-motor symptoms, and it has certainly given me food for thought. I suffer only one or two on this list, the most debilitating being the sleepless nights where I wake up and find it difficult to feel comfortable no matter which way I turn, sometimes driving my wife mad! I mark this piece very useful. Thank you Alan.

posted January 20, 2016
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member, that I'm not sure about. All I know is that many other women, even those that don't have PD, have to deal with fecal incontinence alone. No one wants to talk about it. Based on research I did several years ago when I was writing a CEU article for nurses about this subject, three of the major contributing things are vaginal childbirth, use of forceps, and episiotomies. I think most of us in our late 50's and beyond can say that we had at least two of these done. In my case, I had all three done twice. Add the PD to the mix and there lies the minefield.

posted January 17, 2016
A MyParkinsonsTeam Member

Once again, fecal incontinence was left off of the list. It happens----I don't know why the doctors don't like to talk about it.

posted January 16, 2016

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