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Parkinson’s disease is generally thought of as a disease that only involves movement. But in addition to so-called motor symptoms such as slowness of movement, tremor and stiffness, most people develop other health problems related to Parkinson's. These symptoms are diverse but are collectively known as non-motor symptoms.
It’s important to realize that non-motor symptoms are common and can be more troublesome and disabling than motor symptoms. That’s why you should watch for these symptoms and… read more
Answer Summary
Members connected over the wide-ranging non-motor symptoms of Parkinson's disease, with many sharing that they or their loved ones experienced... Read more
@A MyParkinsonsTeam Member
Denise, your comments about apathy are on the button!
There's a loss of interest, a lack of motivation or energy in daily activities that were, at one time, a priority or cause of some excitement. I find that I face this on many days. I used to scold myself for not getting something, or anything, done in a day. Now I give myself permission to let it go if I don't feel like doing it with the hope of more motivation tomorrow. That has worked better for me.
Thanks for sharing!
@A MyParkinsonsTeam Member,
I totally agree with @A MyParkinsonsTeam Member, I'm very fortunate too that the Gold Standard for treatment of Parkinson's in Generic Form works great for me... No weird side effects... just wonderful relief, at a exceptional low cost....
In some ways, a lot of people have been "programed" by large drug companies, that makes, Billions of $$$ in pure profit,,,, be "teaching" us to say NO to Generic Drugs !! With all the misinformation and preconceived notions / ideas that shared by advertising and "friends" with just enough info to be dangerous.
That intentionally frightens the general public into thinking - ALL Generic drugs are BAD....
As you are aware our Medicare / Self Insurance is pushing back with greater intensity due to the ballistic $$$$ increase, randomly being raised... just because... For myself, with limited resources, I need to be / think smarter then the average "Bear" if I'm to continue experience a high Quality of Life with Stage 3 PD...
Each PD patient is unique in their reaction to generic versus prescription medications. Only you, alone, know best, and at least give it a chance to work, before splurging for the highest cost drug, that is likely a minor tweak to the typical Gold Standard of care for Parkinson's,,,, Alan
What a wonderfully informative posting that has made me think a lot more clearly. I honestly had never heard the term, non-motor symptoms, and it has certainly given me food for thought. I suffer only one or two on this list, the most debilitating being the sleepless nights where I wake up and find it difficult to feel comfortable no matter which way I turn, sometimes driving my wife mad! I mark this piece very useful. Thank you Alan.
@A MyParkinsonsTeam Member, that I'm not sure about. All I know is that many other women, even those that don't have PD, have to deal with fecal incontinence alone. No one wants to talk about it. Based on research I did several years ago when I was writing a CEU article for nurses about this subject, three of the major contributing things are vaginal childbirth, use of forceps, and episiotomies. I think most of us in our late 50's and beyond can say that we had at least two of these done. In my case, I had all three done twice. Add the PD to the mix and there lies the minefield.
Once again, fecal incontinence was left off of the list. It happens----I don't know why the doctors don't like to talk about it.
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