My husband is very upset with me. I have so much trouble sleeping, waking up different times of the night. I can't turn over like I used to, and I can't sleep on the same side that I have slept on for 50 years. We have a queen bed, and it is still quite comfortable. I was at an antique shop last week with my daughter and found a double bed that is so pretty for $80. It's real wood, and even wooden rails. I bought it and yesterday I bought the mattress and box springs for it. It's a small… read more
Very sweet Mike...and I believe my husband would say the same...but in order for him to get a good nghts sleep, I want to make sure he is not laying there awake while I Yelp and punch and kick ...from my response to some meds!
HI PeggyScott. Incontinence? I've had to get out of bed in a hurry. I've thought about using a catheter at night just for the convenience. Is that the kind of stuff you mean? I was having problems with that as one of my symptoms but I didn't believe I had Parkinson's then and argued with my dr that I was severely B-12 deficient and needed shots because my body was not absorbing B-12. He got so sick of hearing it he gave me a script for B-12 shots and I got some. It was American Regent brand. Try to get your Pharmacy to carry that brand. The German company's B-12 is less effective. After my first shot of B-12 I was a new man. The weakness with holding my water completely disappeared. That is also one symptom of severe B-12 deficiency. In fact it can all be mistaken for Parkinson's. B-12 deficiency mimics PD. But I guess I have PD too. I have both. But the B-12 enhanced my whole body and really gave my legs more strength. Some people because of meds they've taken or other reasons cannot absorb B-12 into their cells even when their blood test will show a high B-12 count because they get those pills that dissolve under your tongue. The B-12 has to cross the cellular barrier too and some people have lost that ability. And there is an argument about what range is right. In America the floor is between 200-300. In Europe and Japan they say you're deficient at 500-600. That also on what scale they use for the test.
We sleep in the same bed. I put a baby mattress beside my husband in case he falls out , which did happen until his dr prescribed meds to help him with his sleep disorders. May want to talk to neurologist who specializes in sleep disorders. It has helped us both get some good sleep😊
@A MyParkinsonsTeam Member, I wish it was urinary incontinence I was talking about. I have fecal incontinence and it is awful to deal with and embarrassing when I have accidents. I cannot feel any movement in my intestines anymore, so when my body decides to dump, it just happens. I have to carry around basically a diaper bag for me everywhere I go. It's taken a while for my Neurologist to agree that it is caused by my PD. My Primary Care and GI Doctor have been saying it for years. It affects my esophagus, so why not? Interesting about the Vitamin B 12 deficiency. Thanks for the information.
Sleep disorders are VERY common in PD. I highly recommend going for a sleep study. Since I had mine, my Neurologist adjusted my anti-depressants and also he and my Sleep Doctor put me on Melatonin which has helped immensely to my surprise!