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Dystonia

Dystonia

I have had extreme spasm and twisting of just one hip, was extremely painful and felt like it was trying to pull me in an unnatural position. It was not both hips, just one. I get the claw feet as well. This is the first time it happened and the pain was unbelievable. It was early morning before morning does of carbo/leva. Has anyone had such issues and if so does it happen when you are on your off time. I am between neurologists as mine has been totally inattentive and unhelpful. Any… read more

A MyParkinsonsTeam Member said:

Hi @A MyParkinsonsTeam Member

I've been on these for +3 yrs, for what was considered "Stage 3" PD.... In Dec, he increased my meds by 30%... so now I take 3 Sinemet (25/100) & 1 Comtan (200mg) 4 times each day...

I also take supplement for my arthritic joints and now longer have stiffness in morning and during the day, for past 12 month I've been able to eliminate all pain meds... Later, Alan

edited, originally posted over 5 years ago
A MyParkinsonsTeam Member said:

Hi. you should take magnesium and potassium which almost everyone is deficient in. It is responsible for over 300 in bodily processes.These are natural muscle relaxers.

posted about 5 years ago
A MyParkinsonsTeam Member said:

I have used curcumin turmeric on the advise of my nurse practitioner for an ongoing itching problem that eluded my allergist -- works great!

posted over 5 years ago
A MyParkinsonsTeam Member said:

Hi @A MyParkinsonsTeam Member

Have you ever considered getting a second opinion? Perhaps your currently not maintaining the minimum therapeutic levels of carbo/leva in your system? What dosage do you currently take? Alan

posted over 5 years ago
A MyParkinsonsTeam Member said:

I get from time to time a claw type foot on one side. It also will twist and look like what might be called a club foot. Now, what I do when that happens is first: Make sure you take deep breaths. If you forget to breath, you will have more difficulty in UN-LOCKING your foot and maybe your hip. Then supporting yourself between a doorway or something similar, (maybe a walker might do), swing that leg to the back and let it then swing forward and put the heel of that foot on the floor. Now, try to relax and let your toes straighten out..--BREATHE, BREATHE, AND BREATH. You should find that this will work until your meds kick in. I know it is nard not to think about the PD when you awaken. But try hard and just think about DEEP BREATHING. Hopefully that will help you.

posted almost 5 years ago
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