Connect with others who understand.

sign up log in
Resources
About MyParkinsonsTeam

Connect with others who understand.

sign up log in
Resources
About MyParkinsonsTeam

Is Parkinson’s Painful? Describing the Experience

Posted on May 31, 2022
Medically reviewed by
Evelyn O. Berman, M.D.
Article written by
Sarah Winfrey

While not everyone diagnosed with Parkinson’s disease experiences pain, research indicates that about 60 percent of people with the condition do face this symptom.

Pain can be caused by a number of factors associated with Parkinson’s, including:

  • Muscle stiffness
  • Dyskinesia (involuntary muscle movements)
  • Constipation
  • Dystonia (prolonged muscle contractions)
  • Central pain (pain caused by processing problems in the central nervous system)
  • Neuropathy (nerve damage)

It’s important to understand the different types of pain associated with Parkinson’s disease, as well as what can be done for pain management. As always, talk to your health care provider or neurologist about the best ways to manage any pain you experience with Parkinson’s.

What Kinds of Pain Are Linked to Parkinson’s Disease?

MyParkinsonsTeam members have described the pain they’ve experienced with Parkinson’s in a variety of ways. This pain can be chronic pain (persistent and ongoing pain) or acute pain (pain that comes and goes).

Sciatic Pain

The sciatic nerve starts in the lower back, runs through the buttocks, and continues down the leg. Many members describe experiencing pain associated with the sciatic nerve as a result of their Parkinson’s diagnosis.

One wrote, “I have severe lower back pain and excruciating nerve pain extending down both legs, particularly at night. When I was finally referred to a pain consultant, she described it as the degeneration of my lower spine combined with the rigidity of Parkinson’s creating a trapped nerve.”

Another member said their sciatic pain seems to coincide with muscle contractions: “I’m associating my sciatic nerve pain with my dystonia because I only experience it in the mornings after a rough night’s sleep.” Others have found their sciatic pain severe enough to interfere with daily life. “I’ve had sciatica pain really badly, to the point where I can’t stand up on my right leg or walk,” a member wrote. “I’m hoping it gets better.”

Neck and Shoulder Pain

People diagnosed with Parkinson’s may also experience pain in the nerves that run through the neck and shoulders. As one member asked, “Does anyone else have severe pain in their neck and shoulders? I am dying here and hurting so bad.” Another shared the diagnosis they received, writing, “I am dealing with an inflamed nerve in my shoulder blade. I didn’t get much sleep last night with pain shooting down my arm.”

Burning Pain

Many people describe Parkinson’s-related pain as a burning sensation. “Lately, I have had bad burning feet at night,” wrote one member. Another explained that they are “having problems with burning/aching shoulders.” A member shared that they experience a burning sensation when touching their skin, while another stated that they “often have burning sensations in my arms and legs.”

Other Parkinson’s-Related Pain

MyParkinsonsTeam members have described different types of pain caused by Parkinson’s.

For some, dystonia — involuntary muscle cramping or tightening — causes soreness and pain. In response to another member’s question about their husband’s foot pain, one member wrote, “If his foot is trying to curl or clench due to Parkinson’s, that could cause pain.”

Some members find that Parkinson’s-related pain exacerbates other symptoms. As one member explained, “When the pain is severe in an area, my head starts jumping all around, and my shoulders flare up. I look like I am having a seizure, and it lasts anywhere from 10 or 12 to 18 hours.”

Treating Parkinson’s Pain

Many options may help treat pain caused by Parkinson’s disease. Remember that this pain can affect people differently. As a result, managing or treating Parkinson’s pain can take many different forms.

Gabapentin and Other Parkinson’s Medications

Treating Parkinson’s disease itself may help alleviate pain. Dopamine agonists like levodopa and other dopaminergic medications or therapies may help. Other people find that medications specifically designed to target nerve function, like gabapentin and amantadine, also help with pain.

“Gabapentin worked when I had neck and shoulder pain,” shared one member. “It helped with the shooting nerve pain.” Another wrote, “When I had neck and shoulder pain, I took gabapentin.” Gabapentin can help with pain in other parts of the body as well. As one member explained, “My husband used gabapentin to calm nerve pain in his feet because he was having a lot of pain. It helps.”

Others find amantadine to be helpful in managing their pain. One member wrote that they “take a prescription called amantadine (Gocovri). This is working well at the moment.”

Physical Therapy

Physical therapy is another way to help you manage pain associated with Parkinson’s. A physical therapist may recommend different stretches and exercises, as well as at-home therapies like applying heat or cold packs when pain hits.

Several MyParkinsonsTeam members have found pain relief through physical therapy. One member noted that consistency was key in allowing their loved one to manage pain: “Physical therapy has helped ease the pain, as long as he does the exercises frequently.”

Others find that at-home therapies recommended by physical therapists help them manage pain as much as the therapy itself. One member shared a tip that their physical therapist gave them: “I used to take ice packs to bed with me. The cold pack seemed to numb my legs so I could get to sleep.”

Find Your Team

MyParkinsonsTeam is the social network designed specifically for those living with Parkinson’s and their loved ones. Here, you can ask questions, join conversations, and share your journey with Parkinson’s.

Have you experienced pain with Parkinson’s? How have you managed it? Share your experience and tips in the comments below or by posting on MyParkinsonsTeam.

All updates must be accompanied by text or a picture.
Evelyn O. Berman, M.D. is a neurology and pediatric specialist and treats disorders of the brain in children. Review provided by VeriMed Healthcare Network. Learn more about her here.
Sarah Winfrey is a writer at MyHealthTeam. Learn more about her here.

Related articles

If you are living with Parkinson’s disease, you might often feel run-down, out of energy, or...

Managing Fatigue and Parkinson’s Disease: 6 Tips for More Energy

If you are living with Parkinson’s disease, you might often feel run-down, out of energy, or...
Parkinson’s disease (PD) often comes on gradually with early signs and symptoms. Physical and...

Early Signs and Symptoms of Parkinson’s

Parkinson’s disease (PD) often comes on gradually with early signs and symptoms. Physical and...
Parkinson’s disease (PD) comes with its fair share of challenges. Among the most frustrating...

Insomnia and Parkinson’s Disease

Parkinson’s disease (PD) comes with its fair share of challenges. Among the most frustrating...
Many symptoms of Parkinson’s disease and parkinsonism can interfere with daily life. Parkinson’s...

Micrographia (Handwriting Difficulties) and Parkinson’s Disease

Many symptoms of Parkinson’s disease and parkinsonism can interfere with daily life. Parkinson’s...
Hallucinations and delusions occur for 20 percent to 40 percent of people with Parkinson’s...

How To Recognize Hallucinations and Delusions

Hallucinations and delusions occur for 20 percent to 40 percent of people with Parkinson’s...
Parkinson’s medications like levodopa can cause motor symptoms known as dyskinesia.

Dyskinesia vs. Dystonia: Understanding the Difference

Parkinson’s medications like levodopa can cause motor symptoms known as dyskinesia.

Recent articles

If you have Parkinson’s disease, you may be curious about the role of vitamin D in your symptoms...

3 Facts To Know About Vitamin D and Parkinson’s

If you have Parkinson’s disease, you may be curious about the role of vitamin D in your symptoms...
The U.S. Food and Drug Administration (FDA) has approved updated boosters for messenger RNA...

New COVID-19 Vaccine Booster for Omicron: What To Know if You Have Parkinson’s

The U.S. Food and Drug Administration (FDA) has approved updated boosters for messenger RNA...
Whether you’re living with Parkinson’s disease or caring for a family member or loved one who has...

Can You Prevent Parkinson’s Disease?

Whether you’re living with Parkinson’s disease or caring for a family member or loved one who has...
The Centers for Disease Control and Prevention (CDC) has approved a second COVID-19 booster shot...

What People With Parkinson’s Disease Should Know About Getting a Second COVID-19 Booster Shot

The Centers for Disease Control and Prevention (CDC) has approved a second COVID-19 booster shot...
If you or a loved one are living with Parkinson’s disease, you’ve likely heard the term “...

Parkinsonism vs. Parkinson’s: What’s the Difference?

If you or a loved one are living with Parkinson’s disease, you’ve likely heard the term “...
Self-care is essential for caregivers of people with Parkinson’s disease.Hallucinations and...

Self-Care Tips for Parkinson’s Caregivers

Self-care is essential for caregivers of people with Parkinson’s disease.Hallucinations and...
MyParkinsonsTeam My Parkinson's disease Team

Thank you for subscribing!

Become a member to get even more:

sign up for free

close