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A MyParkinsonsTeam Member asked a question 💭
Carrollton, TX
March 3, 2016
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Answer Summary

Members shared deeply personal stories about the unpredictable and varied progression of Parkinson's disease, with some describing early... Read more

Members shared deeply personal stories about the unpredictable and varied progression of Parkinson's disease, with some describing early symptoms like difficulty swimming or biking, while others reflected on memory loss, tremors, loss of balance, and the fear of losing independence or becoming a burden to loved ones. Several members found strength and comfort in their faith, viewing their struggles as temporary and trusting in a higher power to carry them through, while others grappled with anger, doubt, and existential questions about suffering and the existence of God, sparking an intense and emotional theological debate within the thread. A recurring theme was the importance of living one day at a time, maintaining a positive attitude, staying active through exercise, leaning on community support, and finding meaning and gratitude even in the face of a progressive, incurable disease.

A MyParkinsonsTeam Member

I am not so sure I want to know the progression of PD. As you say it is different in every case and why spend all my time worrying about the future when I can't do a damn thing about it and may not have that symptom or side effect anyway.I would rather take it day to day and enjoy what I can and get through what I can't . Sure I'm scared but so is everyone else.I will deal with it as it comes and learn enough to give me some hope that they will find a cure in my lifetime. or to deal with whatever my problem is today. Thankyou all for the wonderful support you give each other. Hugs to all ....Zanne

March 5, 2016
A MyParkinsonsTeam Member

Sue61 said it very well. When we are weak, He is strong. I rely and depend on that strength.

My journey with this monster began with a loss of complete control of my legs and my hands. I can not name a particular day when this began. Loss of energy and my focused mental acuity also ensued. The loss of awareness and the loss of the ability to communicate effectively are the things that I dread the most.
The loss of Independence has been my greatest concern and adjustment.

All of the neurological diseases and many of the cancers destroy the body's ability to function. We are not unique in that regard. This PD monster attacks us physically and mentally. It seems to be ever evolving and changing. Our greatest issue may be the need for constant adjustment.

Depression may be the most dangerous aspect to this monster. It temps patients to stop trying, to stop fighting, and not infrequently to give up entirely. That is not a judgement or indictment of any patient. It is an attack on the complexity of this monster we call Parkinson's. The cure and the treatments must be a multi-faceted program or answer. If that is not the case, it will never defeat the monster.

My ability to personally defeat the power of this monster depends not on me but on the faith that I have in the Lord and God that has already taken care of tomorrow for me. My cure is already planned. It will happen either in this world or in my Heavenly home. This body and its problems are temporary. In the end the monster loses.

March 3, 2016
A MyParkinsonsTeam Member

Wow! Reading all the comments above are so inspiring in that we all have learned, whether the caregiver(me) or the patient, that God will give the strength and comfort to keep fighting, praying and knowing in His time there will be a cure or at the very least a treatment for daily use that will eradicate the symptoms completely! My hubby has been keeping on keeping on for 14 years now and is so competitive that he will most likely, with God's help, beat this disease! Even in pain he continues on daily and I am so blessed to have him! He wakes up each day, always has, singing and whistling his way along. God bless and keep smiling :)

March 4, 2016
A MyParkinsonsTeam Member

I had trouble holding my coffee cup, I had to brace it against the refrigerator while I poured my coffee. When I went to see my doctor he sent me to a neurologist. He told me about the demon called Parkinson's disease.
It wasn't long after I had to get rid of my straight drive car. My left foot and right hand wouldn't get along and I scraped gears.
The demon's power to take my memory is what I fear the most. Sometimes I'm in the front yard with the dogs and I have to physically tell myself where the front door is.
I forgot my anniversary it was our 40th too. My wife was mad at me for a while and I didn't know why. I had to explain how I forgot stuff (about the dogs).
I forgot to tell her I had a softball meeting, I always tell her where I'm going to and about what time I'll be back. She called looking for me when it got kinda late. So I fixed her phone so she can look me up and know where I am. I afraid I might get out somewhere and forget how to get back home.
I brought a food package for the poor at the local market. The cashier asked who's name to put on it. I thought of my granddaughter right off the bat but, couldn't remember her name to save my soul.
So I wait on the demon to take its next swipe at me. Had what I call the shakes all day yesterday. It feels like I'm shaking from the inside out. I stagger like a drunk. (You know the difference between a drunk and an alcoholic.....drunks don't have to attend all those meetings.) hahahaha
Got to laugh at this demon, if I don't I might start crying.
Try and live by my motto: Improvise, Adapt, Overcome. Jumped a ditch one day. Somewhere in mid air I blacked out and ended on my hands and knees in the roadway on the other side. Improvise: Don't jump over stuff anymore. Adapt: Go around. Overcome: I don't end up on the ground now.
@A MyParkinsonsTeam Member I hope this answered your question.

March 4, 2016
A MyParkinsonsTeam Member

Regardless of the symptoms, this disease is a robber-- robs husbands and wives and children and grandchildren--it's a thief that takes up residence in the body and plays havoc. I fear the latest stages when many people are having to deal with feeding tubes, Incontinence, dementia, and wheelchairs. We also cling to our faith and take some comfort in knowing this disease ends when we step out of this earth suit, transition from earth to eternity and enter into perfection.

March 4, 2016

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