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A MyParkinsonsTeam Member asked a question šŸ’­
Marshall, MI
October 22
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Answer Summary

Members with Parkinson's opened up about why they sometimes sleep all day, sharing that fatigue is often tied to overdoing it the day before,... Read more

Members with Parkinson's opened up about why they sometimes sleep all day, sharing that fatigue is often tied to overdoing it the day before, stress, tremors, or the disease itself. Several members shared helpful strategies like sticking to a sleep routine, taking short naps instead of long ones, doing regular cardio exercise, and accepting rest without guilt rather than fighting it. A recurring theme was that while the exhaustion can be frustrating and unpredictable, the community finds strength in knowing they are not alone on this journey.

A MyParkinsonsTeam Member

Good day,
Yes I also have this problem and for me it is mostly related to two issues.

Far easier to be exhausted!
What was a simple day in the garden before now can leave me exhausted for 2 days. A day of shopping can lead to a day or two to recoup.

Stress
More often it is Stress Overload. But now stress is measured in far lower levels:
A long visit to the doctor, concern over understanding and follow thru on paper work, worrying about things where I have no control or ability to change,

On my computer screen start up is

"God, grant me the serenity to accept the things I cannot change,
Courage to change the things I can,
And wisdom to know the difference."

šŸ˜‰

October 25
A MyParkinsonsTeam Member

Some days the couch looks really good! I work hard to stay on a routine so my sleep doesn't get messed up. Sometimes I take an hour nap. If I go longer it affects my ability to fall asleep. I use a routine to fall asleep at night. I go to sleep at 10:00 and usually wake up around 7:00. I listen to my phone, playing thunderstorm and rain for sleep. It works really well. My tremors are the main problem but eventually calm down so I fall asleep imagining myself sitting on the porch on a warm summer evening watching a thunderstorm. I have saved an episode so listen to the same thing every night. I use Sirius radio. Eventually the sound of the rain turns into white noise for several hours. I sleep in the same position and keep moving my hands two different positions until they settle down. I had stopped drinking caffeine four or five years ago but recently started drinking mushroom coffee called Ryze. It might affect my morning tremors a little but I'm enjoying the caffeine boost. I hope you find a routine that gets you back on a schedule that works for you. I think consistency is the key. I no longer enjoy impulsive activity.

October 23
A MyParkinsonsTeam Member

I have been told that it is Parkinson’s fatigue. It is usually bad for me after I have done too much the day before. I don't fight it anymore. It may take 2 or 3 days of sleeping all day, but then I am ready to overdo it again! I love that day that I feel nearly normal 😌

October 23
A MyParkinsonsTeam Member

This journey makes to many days like you described can’t get up you don’t know why that’s what we live without knowing why ! The tests are good you’ve got this take this still feel bad you have to give it time ! Five years later you don’t have what we thought why did I get treated for it just happens life goes on and the the search continues year after year why do I feel like I do then test look good ! That’s the stories of many on this journey but finally the symptoms don’t lie if it walks like a duck it’s a duck. I’ve learned that Parkinson’s is a long journey all I’ve wanted have been what’s wrong with me I still don’t have any energy,l hurt, my headaches are 24:7 , why can’t I walk straight ? This is what it is I want answers but I’m going to go out fighting and enjoying life that I live everyday and get the most out of it that I can squeeze out of it . A new sunrise šŸŒ… today and more to come in this life I will enjoy all that God gives me and fight for all I can get !ā¤ļøšŸŒ…ā˜®ļø

October 23
A MyParkinsonsTeam Member

The answers/comments about problems sleeping all day are interesting. When this happens to me, it's not due to being tired. The episodes I have are that I simply cannot awake in the morning, It seems that my eyes are so heavy I can only briefly open them before they're closed again. I struggle to open them again and the same thing happens, and I can only utter to my spouse that I just can't wake up. I then immediately go back to sleep. During these episodes I will sleep and not awake until the point that my brain can function. This might be between 12 noon and 3 - 4 PM. Once I can stay awake, I'm still very lethargic and really can't do anything for the remaining of that day. The day after one of these episodes, I might be just a little more sleepy in the morning than usual and stay in bed for an extra hour or two. When fully awake, I can function relatively well and can get some things done. Two days after the episode it's like I'm back to my ole' self and can carry on with whatever I need or want to do...except on those days of brain fog. I do not drive on those days, so I complete tasks around the house, read, work on my Ancestry tree, or join a webinar, if available that day. I don't sweat about those "episodes" because I know in a day or so I'll feel much better. Cheers to all of you!!

October 24

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A MyParkinsonsTeam Member asked a question šŸ’­
Marshall, MI