Full time caregiver for my husband for 8 years. It's the hardest job I've had. He needs help with most daily tasks and it's exhausting. As a caregiver you are a nurse, cook, housecleaning,handyman, do lawn care, dispense meds, all the things we used to do together. Lonely.

I am a caregiver to my husband. We also live in an apartment connected to my daughter's house which gives us the extra help we need if my husband falls or is ill. The main thing that I keep stressing to my husband, Adrian, is "please and thank-you's" make a lot of difference to my care of him. This whole experience with PD has been hard. I went from having a husband who could do and fix anything to being the one who had to be in charge of everything. It is just as hard on him. We couldn't make it without the Lord's help. I pray every day to help me to be patient and loving even when he is having a bad day and to realise that there are things that happen that neither one of us can help.

Oh dear that sounds awful. I have recently spoken to a Parkinsons counsellor who works with our neurologist. She said it is not unusual for pwp who get dementia to think like that and get confused about the truth. She was very helpful in helping me to accept the changes. I would be talking to your neurologist and seeking help for yourself. It is confusing and upsetting as we see the person we love and given our lives to changing. All the best.

You are indeed fortunate to have a daughter willing and able to help you. I believe relationships are the crucial link to being able to live with hope and joy.

Thank-you so much everyone for sharing. Yes, it's lonely, and I can see we are all doing the best we can. All of your comments are very encouraging. Thank again.