Do Most People With PD Go For The DBS Surgery? And If Not, Why Not? | MyParkinsonsTeam

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Do Most People With PD Go For The DBS Surgery? And If Not, Why Not?
A MyParkinsonsTeam Member asked a question 💭
posted May 24, 2016
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A MyParkinsonsTeam Member

I do not mind telling you that I am 56 Years old. I like to believe that 50 is the new 30,,, ;-)

posted May 26, 2016
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member. Hey there...do you mind my asking your age? You said you feel like a kid again. We all would love to have that. Like what we saw on "When Harry Met Sally" and she faked an orgasm …remember that? There was an elderly lady sitting nearby and her comment was "I'll have what she's having". So Becky...i'll have what you're having. LOL :-) Sterling

posted May 25, 2016
A MyParkinsonsTeam Member

I had the DBS surgeries done last June, and I feel like a kid again!! I have to make myself slow down, not just "jump ad run" the mind is willing but the body is weak. I went from using the 8mmg Neupro patch and fifteen pills a day, I am now pretty well set at 2.50 on each electrode, and only 4 pills a day.

posted May 25, 2016
A MyParkinsonsTeam Member

I don't understand why the doctors push DBS because once you have had it done there is no going back. I have had it done twice and neither worked. I have since have had a duo dopa tube put in and I am at least 60% better than I was I am at advanced Parkie stage and still live on my own, do my own gardening, housework etc etc. I am sure that Duo Dopa is available in America. If it is in my honest opinion I would go for the Duo Dopa. It is easy to take out a tube in your tummy than a DBS out of your brain

posted May 25, 2016
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member. Hi bean. Good question bean...but so very subjective. I think there are many different reasons as to why some of us have DBS and some do not. As for myself, I'm hoping I will never reach such dire straits that I might be forced to have it done. Others may be disqualified by their doctors as not being good candidates for DBS. While others may wish to recoup some semblance of quality back in their lives. I'm not there yet but I have seen those who are quite miserable...noboby wants to be miserable.

I hope you are doing well today...feeling pretty good are you? Sterling

posted May 24, 2016 (edited)

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