Connect with others who understand.

sign up log in
Resources
About MyParkinsonsTeam
Powered By
Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Experimental Medicine Trials

Experimental Medicine Trials

Does anyone remember the name of the lady in her 80's who posted about an experimental medicine she is taking and getting outstanding results ? Also what is the name of that medicine ? It starts with a T.

posted July 11, 2016
A MyParkinsonsTeam Member

there is a web cast today at 12 noon eastern time on the fox site

posted August 2, 2016
A MyParkinsonsTeam Member

Hey, I found it. Tasigna. I still do not remember our lady friend's name, but here is the Michael Fox link for the latest position on this experimental use of Tasigna. https://www.michaeljfox.org/foundation/news-det...

posted July 14, 2016
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member , Hey I found the medicine. it is called Tasigna (Nilotinib). Michael Fox Foundation website has a lot about. I still do not remember the good lady's name. Also for people starting to have poor response to their levodopa there is another antiviral that is being used: Amantadine (Symmetrel). All the best.

posted August 3, 2016
A MyParkinsonsTeam Member

ok, so web cast tells us nothing new other than "too bad" you still have to wait - gee if it takes 10 years who knows. if something works just give relief

posted August 2, 2016
A MyParkinsonsTeam Member

Never heard of it. Would be interesting to find out...

posted July 13, 2016

Related content

View all
Is Age A Factor For Receiving A Trial Drug For PD?
A MyParkinsonsTeam Member asked a question 💭
Has Anyone Tried The New Glove That Is Supposed To Help People With PD?
A MyParkinsonsTeam Member asked a question 💭
Is There A Cure For Parkinson's Yet
A MyParkinsonsTeam Member asked a question 💭
Already a Member? Log in