That is how we felt too...scared, but it went pretty smoothly for us. He stayed overnight 4 2 nights, he gets nauseous from anesthesia, otherwise one night would have been good. Surgery was Thursday, came home Saturday morning, went to Neurologist to turn on device and program it, and I watched a miracle happen right before my eyes.......we both were in tears, but these were tears of joy. For the first time in over 12 years he was not shaking.....I could not stop staring at him! In a weeks time he was able to drive again, write a legible signature.....and read a book, without making it impossible because he kept moving it and could not focus! He seemed 10 yrs younger.

I also have young onset im 43 diagnosed at 40.my meds increased quickly at first but then I found the right level and did well, had 12 months of doing ok. My meds have increased recently again and I understand your fears, I was hoping for a lityle longer but thats not up to me. I currently take 6 250 mg levadopa one long acting 100 mg one and 3 gms of sifrol over the day. I see my neurologist soon and expect something to be added to try to make them last longer. Ive bern offered the chip in my head, think thats DBS but ive resisted, I have however heard that the earlier you have it done the better the results. Ive resisted as I feel a cure is not far away.I take control by looking after my diet and taking good vitamin suplements.I truly understand where you are at I expected to be ok for a long time and you may well be when your meds stabalize. I live in the day and try to release the anger, not always easy x

Karen G...Did your husband have Parkinson's for 12 years....before he had the DBS surgery? This is interesting to me because I have had it 15 years and had the surgery in March and since then have not found which voltage will work for me..they still have me take all the meds I took before. I have to bring the machine back each month so they can check it. So far I started out on 20 volts and am now up to 150 and I am in Part B with a meter reading @3.3. They tell me to be patient but it will be 6 months soon since I had the surgery in March...and I am so impatient. I went thru the surgery with no complications..and I am tired of having those Parkinsons symptoms especially the pain. Can anyone out there help me out????

KarenGerstLeDuke, that is good to know cause eventually I will have no choice but to go for DBS. and I am not looking forward to it either. Sounds scary.

My husband had DBS surgery over a year ago, and it was very successful. He is off all of his PD meds except a small dose of the levodopa. All the other meds caused so many side effects, his bp went very low, unsteady, weight loss etc. We hesitated to do the surgery for years, but the meds were not helping him any more. Best decision he ever made! It seems like a miracle.