My mother always said "sometimes people with the most degrees have the least amount of common sense."

My first doctor was a young woman. I don’t think she had been in practice too many years. She said I had Parkinson’s and my daughter had to ask questions, such as “is there anything she can take”, and a few more. I knew of Parkinson but not much. The second doctor was a man, and won’t go into detail, but I told him on my 3rd visit I would not be back. I got little of anything from him. I put it out on this site I was looking for a new doctor. A man and a lady responded and that is the doctor I have seen four times now. She has been wonderful. So, if you feel you are not getting enough info, or anything else, don’t stay. People change all the time. I tried the levadpa for two weeks. Could not handle them, lost 5 pounds, and I only weighed 98. Four years later and I still cannot gain it back. You will get a lot of info on here as to what people have tried that is not meds. The best to you.

I so agree with you. So difficult to find a "good, caring neurologist". I was diagnosed 3 1/2 yrs ago, don't respond to Sinamet , am now on low dose Neupro patch, Can't see any help there. Very discouraging. Neurologist is 2 1/2 hrs north, she is a movement specialist and good reputation. I feel she doesn't really listen. Will be doing Tele-Med appt soon, never done that. I too have lost wt and didn't have any to lose. I miss the simple things I've always done well, cooking, sewing, gardening, exercise, tremor worse after exercise. It's a tough road to walk. My primary Dr is taking the best care of my situation... Any and all advice is welcome.

From parkinsonsdisease.net:

Parkinson’s plus syndromes are a group of conditions that cause symptoms like PD but are not the same disease. These conditions are also sometimes called atypical Parkinsonism. Examples include:1-4

•Multiple system atrophy (MSA)
•Dementia with Lewy bodies (DLB)
•Progressive supranuclear palsy (PSP)
•Corticobasal degeneration (CBD)

Atypical Parkinsonism is usually diagnosed if someone shows symptoms of PD but does not respond to standard PD treatments. Unfortunately, there are no treatments that slow or stop the development of atypical Parkinsonism. However, there are treatments that can help manage symptoms.

I had not heard of the term but found some information here
http://emedicine.medscape.com/article/1154074-o...
.
Several primary neurodegenerative disorders share parkinsonian features, such as bradykinesia, rigidity, tremor, and gait disturbances. These disorders have complex clinical presentations that reflect degeneration in various neuronal systems. However, because of the common parkinsonian features, the disorders have been collectively named Parkinson-plus syndromes.

Parkinson-plus syndromes respond poorly to the standard treatments for Parkinson disease (PD). An inadequate response to treatment in a patient with parkinsonian symptoms suggests the possibility of a Parkinson-plus syndrome and warrants a search for the signs and symptoms of degeneration in other neuronal systems.
In addition to lack of response to carbidopa/levodopa (Sinemet) or dopamine agonists in the early stages of the disease,