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I went to my Movement Disorder Doc today and as some of you know I have been complaining about my neck killing me @ times . She touched the back of my neck and immediately said "Yes, your Dystonia has moved to your neck as well"
She wants me to start Botox next month in the neck.
Question is --Has anyone had the Botox in the neck and how painful is it and does it last for a while? I am doing it because this neck pain is just to much at times,...
Thanks in advance!
Noreen
Have any of those with pain considered changing their sleep pillow or doing away with it all together? I must have tried 25 different pillows, and have about 3 favorites, that I need to rotate throughout the week.- because for what ever reason the same "setup" rarely feels good 2 nights in a row... Works for me.. Alan
I want to thank everyone that answered :) I will be paying a $25.00 Co-pay and my first appointment isn't until September 23rd. I have done the swapping out pillows, buying water pillows --bamboo ones too...lol but nothing works. Some days it is not so bad and then the days *More than I'd like* that I have all I can do to keep my head up. :) I will let everyone know how I make out.
Botox helps me everytime, about every three months. No copay with my insurance.
Yes the ipillow game bc of our necks. I am getting hot bc of meds found one that's is wonderful at Belk dept store southern store supports cools and is wonderful.
@A MyParkinsonsTeam Member. "I'll have what she's having"....said Sterling. Where do you live that there is no copay for botox? Should I request another form of botox to be used...one that is less expensive and more successful in helping free my neck from the strain of cervical dystonia? What type or brand does your doctor use for you? Maybe if I can get the name, I can request it next time. Lucky you. :-) Sterling
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