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Have You Been Diagnosed With MSA-P? If So, What Are Your Most Challenging Symptoms? Does Exercise Help?

Have You Been Diagnosed With MSA-P? If So, What Are Your Most Challenging Symptoms? Does Exercise Help?

My husband was diagnosed with Multiple Systems Atrophy, Parkinson's Type, MSA-P, after 9 years of a Parkinson's diagnosis. There is not much out there about this diagnosis. Thank you for your help.

A MyParkinsonsTeam Member said:

Being each person who has this will be different in how their symptoms are. I can tell you that I have trouble with the following....light headedness, eye troubles, balance issues cramping in my right hand, walking any length of distance (without breaks), and dysautonomia. Yep life is beautiful. I have adjusted my life around it but there is always a bright side.

posted almost 4 years ago
A MyParkinsonsTeam Member said:

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC26...
An article on diagnosing MSA-P or MSA-C

posted over 3 years ago
A MyParkinsonsTeam Member said:

Thank you. My husband's predominant issue is that the eyelids clench shut and to open them he has to manually lift the eyelid.This is part of the malfunction of the autonomic systems. He has been through 2 surgeries and takes injections every 6 weeks now, but it is still a difficult issue to overcome. Thank you for your positive outlook! It is refreshing!

posted almost 4 years ago
A MyParkinsonsTeam Member said:

My husband has alternating cold/hot sensations and nothing helps. It drives us both crazy. Anyone else have such symptoms?

posted over 3 years ago
A MyParkinsonsTeam Member said:

Life with this is challenging, but with a great partner life is never bad.

posted almost 4 years ago
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