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One of my doctors stated I should be taking COQ10 for my PD to help with muscle cramps and my PD symptoms. He wants me to start with 200mg every day for a week and then increasing weekly until week four. At that time he wants me to be taking 1200mg every day from then on. Has anyone else taken this dosage of COQ-10 and does it help?
My husband's PD doc. recommended taking 200 to 300 msg of CQ-10 every day.
My Neurologist stated there is no appreciable gain in taking high doses of CQ-10. He said studies show 200 to 300 msg per day provides the same affect as higher doses. The body will only use the CQ-10 it needs. I was taking 600 msg each day for 10 years. I've always been a vitamin freak, and take many of them. That's why I'm so good looking. LOL. My VA Neurologist is renown both in the public and private sector. He said 200 mgs a day is sufficient. This how much I take now and I have seen little difference. If you take Carbidova/Levodopa or Sinemet it's imperative to take CQ-10. Just my humble opinion. As always discuss all things with your doctor.
@A MyParkinsonsTeam Member and @A MyParkinsonsTeam Member, FYI, the large clinical trial that was done compared 1200mg and 2400mg of CoQ10 and found that they didn't improve symptoms any more than a placebo (sugar pill). On average, PWP in all 3 groups had worsening of symptoms over 16 months. There were more side effects in the CoQ10 groups than the placebo group. These were PWP who hadn't yet started on Sinemet or any PD medication and had PD symptoms for less than 5 years.
There is still the possibility that PWP who have low natural CoQ10 might benefit, but the study didn't test that possibility. I would hope to get my hands on the data set and test that...Right now, there are no data that support anyone using CoQ10 for symptom relief or slowing the course of PD.
I take 1000 a day. It is definitely delaying the disease progression says my doctor.
Well, I am personally making an effort to get a better data-driven answer. I will post more about this when i know more. Large studies funded in whole or part by federal funds are supposed to make the data accessible to others in the research community. I fall in that category of people who can do more analysis of the data and hopefully give docs and PWP better guidance about CoQ10.
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