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Akathisia
No discussion of physical discomfort in PD is complete without a mention of akathisia, or restlessness, a frequent and potentially disabling complaint. Some patients with parkinsonian akathisia are unable to sit still, lie in bed, drive a car, eat at a table or attend social gatherings. As a result of akathisia, patients may lose sleep or become socially isolated. In about half of the cases of parkinsonian akathisia, the symptom fluctuates with medications and may often be relieved by… read more

November 10, 2016
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A MyParkinsonsTeam Member

I jerk a lot . I recently tossed my glasses in the air during a literary talk and yelped. I have to have a rail to stop me falling out of bed. I frequently toss coffee cups in the air; usually over something important. I have terrible tingling in my hands which is at the same time excruciatingly painful. My feet are numb, but move constantly, I stagger like a drunk. and have been accused several times.
The constant movement is tiring, embarrassing and causes irritation that others do not realise we are in pain. I try to keep smiling as I am sure you do. Take care. Jenny

November 11, 2016
A MyParkinsonsTeam Member

We tried everything we could think of. Wedge, diet, etc. I started keeping a journal of diet and times of "reflux". Because Nexium didn't work at 40mg qd, nor omniprezole, and there was only a mild hiatal hernia it wasn't making sense. I am a registered dietitian and I thought there was no rhyme or reason. Finally, I did more research and we started carbo-Levo. There is no more "reflux". It was a parkinsons symptom...though not as common as some. Keep on top of concerns. Good luck to all!

November 22, 2016
A MyParkinsonsTeam Member

Hello please see my answer above thank you

November 15, 2016
A MyParkinsonsTeam Member

Hi Jenny, sorry to hear you have these conditions. I do not know the fix but I will try to keep you in my prayers. God Bless You.

November 15, 2016
A MyParkinsonsTeam Member

Thanks for sharing. We plan to chat with our Dr soon. Take care. Parkinsons presents some real challenges to life.

November 11, 2016

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