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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

For All YOPD Person Under The Age Of 45 : Do You Feel Isolated Being Young With This Disease In The PD Community?

For All YOPD Person Under The Age Of 45 : Do You Feel Isolated Being Young With This Disease In The PD Community?

Do you wish there was more help support groups for YOPD sufferers?

posted November 27, 2016
A MyParkinsonsTeam Member

I would like a support group for YOPD ages 20 -45 years old

posted November 28, 2016
A MyParkinsonsTeam Member

That is why a forum such as this is so important. I know where I am from I am one of ,if not the youngest person with PD I know of.I tried the regular support groups, and they were great but I still felt out of place.i am very thankful for forums like this so maybe just maybe some of us won't feel so alone.

posted December 18, 2016
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member. Hello Joshua.I just recruited you to my team… Team Sterling. Welcome to the MPT network. Do you want to talk? My entire team is ready, willing and able to help you with your issues and help you cope better. And you will feel better about everything. I'm sure that my wonderful team will be in contact with you and you can talk about anything you like., for as much as you want and as long as you want.

We're all here for you. Check us out. Best wishes. Sterling

posted November 30, 2016
A MyParkinsonsTeam Member

Also....another note....I have found with my husband that the isolation does not help him. Isolation breeds into depression, self pity and loneliness. Getting out and seeing people- talking and connecting....no matter what the age- helps and encourages him ! We have learned in our lives and still learn that there is always somebody in a worse situation. We also look for opportunities to encourage others in spite of our challenges. Attitude is everything. :)

posted November 29, 2016
A MyParkinsonsTeam Member

Manon,

We just started going to a Parkinson's social group and I think it is great for my husband who has Parkinson's. He is not as young as you. He is 56. However there are people much older....in their late 70's who are much more active than Rick !! It is actually shocking and very encouraging !!

My advice- if you can't find a group for your age group or aren't able to start a group- why not join an existing group ??? Yes, the people may be older but trust me.....it can be encouraging to hear their stories and how they are doing well and having great positive attitudes in spite of their challenges.

Going to an existing group may help until you find some connections within your age group. All the best !

posted November 29, 2016

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