Have you discovered any ‘life hacks’ that make your day to day living with Parkinson’s any easier?

Have you discovered any ‘life hacks’ that make your day to day living with Parkinson’s any easier?

What are the best tips of simple things you were able to do, or adjustments that you were able to make, that helped make an everyday task easier?

(A life hack is something small that you do to make life easier, for example using liquid soap so you don’t drop bar soap, or putting a satin sheet on your bed to make it easier to turn over.)

A MyParkinsonsTeam Member said:

We moved mom into a seniors home 6 years ago. We added auto door opener with remote. Her recliner is a lift chair. We have remotes for her blinds, and air conditioner. We bought her a 7" tablet that is portable, and has the voice activation mic. We have a bedsheet in half on her bed so if she is having trouble in the mirning, the nurse can help her move by pulling on the sheet. She wears a wrist alarm to "Connects". If she pushes it, the ambulance goes and it autodials me so I am immediately connected by intercom. We have elastic shoes laces, put large crochet pins through her zipper pulls. We have reachers in every room, a seat chair in her shower. I bought magnetic strips from ikea meant fir knives to fasten things in the walls so they are handy ( not in drawers). Zippers are better than buttons. I carry a garbage bag in my car and put it on the seat as mom can slide easier on her seat when she enters and exits. No rugs. No sticky soled socks. I have lists out on the table for morn, noon, night because if homecare comes over, sometimes they dont do anything unless mom can tell them. Her retrieval is slow. She just says " look on the table". We have lights on timers. Blankets that are light weight tend to be better for mobility in bed.

posted almost 3 years ago
A MyParkinsonsTeam Member said:

Good day, I bid you greeting from down under Australia.

Re- things that help me get through the day, not necessarily
to make it easier to get through the day.

I keep my self busy with positive pursuits, these being,
doing tai chi practice and, attending classes.
I also attend yoga class. I do gardening, I ride my bicycle,
I volunteer myself for Parkinson's research at the city's
main hospital and university.

I am a study subject for university occupational therapy
students doing their assignments.

Last week I gave a talk/tutorial to second year medical students
at the city's NOTRE DAM university.

I attend our regular support group meetings,
I attend Parkinson's educational seminars.
I attend dancing classes, that is best described
as movement to music.

I am an active member of an 'over 50s' club and,
on Saturday morning, I join up with my coffee club,

Sunday morning I keep free so as to attend church.

As you can see, there just not enough hours in the day for me.
I am never bored. I wouldn't want it any other way.
Oh yes, I almost forgot, I play guitar and I'm learning to play keyboard.

It's not for me to sit around moaning, crying, and lamenting with a poor me attitude.
It's vital to keep active both mentally and physically.

How does all that sound, not bad for a sixty five year old,
who has had Parkinson's for eighteen years, eh !?

I reckon that I must be doing something right.

MAINTAIN A WINNING POSITION.

Go well.

ALIVEO / STEWART

posted over 2 years ago
A MyParkinsonsTeam Member said:

I wear a backpack with weighs to keep my back straight and to counteract the sensation of falling forward.😊
- use a glove shape washcloth to scrub. 😊
- play music while I get ready in the morning. The rhythm helps me move and distract me from the pain plus don't have to hear myself cursing or huffing as I get dressed or if possible. I sing instead.😊

posted almost 3 years ago
A MyParkinsonsTeam Member said:

Hi everyone
I have a small electric potato rumbler to get most of the peel off.
A travel hairdryer and kettle are lighter. A portable gas powered heated hairbrush to keep curls under control
A non slip tray to carry items including hot drinks
A battery operated can opener
Steamer and slow cooker for cooking
A bread board with raised edge to spread butter
Rings that fit round plate to stop food being pushed off
Adapted angled cutlery
A stool in the shower
A turntable seat to help swing round on the chair
A hot water dispenser so I can boil a cup at a time without lifting kettle
A bed rail to help in / out of bed
. Ask for referral to occupational therapist for more ideas.
Some of these items can be supplied free of charge from NHS in U.K.

Good luck. I would appreciate any other ideas

Happy Christmas to all xxx

posted almost 3 years ago
A MyParkinsonsTeam Member said:

I always push a cart when shopping, when they are available. I've never fallen doing this.

posted almost 3 years ago
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