I Am Not Sure I Should Have Joined This Group. | MyParkinsonsTeam

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I Am Not Sure I Should Have Joined This Group.
A MyParkinsonsTeam Member asked a question 💭

My husband has been waiting for a diagnosis for about a year and he would hate it if he knew I joined this group. Although he has many symptoms, I am struggling the most with his apathy. He has been clinically depressed for years and so have I. There is some question whether his symptoms are related to medicines he takes for other conditions (including depression) or Parkinson's Disease. Again, he would hate it if he knew I shared these thing about him to this group. But he has not told any… read more

posted December 26, 2016
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A MyParkinsonsTeam Member

It's hard for them, as they are fearing what will come with the disease and they are ashamed. My father hid it for years, my mother noticed, but he refused to let me take him to the doctor's. For years he was hardly talking to us, which made me feel less loved while he was absorbed with the effects of the disease. He did not want us to see how he struggled with peeling and slicing an apple, and sat in a different room when I was around. And thus we have lost valuable years I could have spent more time with him when it was more possible. My best memory is the time we took him to a car museum, he fully enjoyed it and at the time could then still walk as long as he rested every now and then. Now, a trip of 45 minutes is the max we can do to him as he's got all kinds of other physical problems and now I'm looking into wheelchair taxis. It hurts me and that hurt him even more, to have to wheel him around in a zoo. But making you hide it too, is hurting you. Because you are dealing with the loss of your husband as you know him and the man you married. His depression is hard to deal with and even more so that you have to to push him to do things, see people. I can see how it affected my mother. Please tell him that, because he will need to be strong and get support yourself to make the best of the years you still have together.

posted December 29, 2016
A MyParkinsonsTeam Member

Since I was diagnosed 2yrs ago I met someone who thinks he has it has not mentioned it to his wife. It is such a shame. I hate the fact that I have it & don't want to become a burden to my family but I'm determined not to let the b-----rd get me down we need to be able to laugh at ourselves and look it straight in the eye & say"Battle on"Looking in to laughter yoga. Good luck & blessings sent to all🤗

posted May 8, 2017
A MyParkinsonsTeam Member

I don't understand the timeline on this site as I see messages posted from some months ago that I missed. I hope you all will forgive me if I have failed to respond to some of your kind and caring messages. I do check in but have not been very active. I am past the point of concern about belonging to this group since my husband has opened up to some friends, had positive results from some medication changes and we've even taken a couple of short trips - one involved flying and he made all the arrangements. We saw a very dear friend on that trip and just being with her (which we are seldom able to do) made a great deal of difference. So I am relieved to say that at the moment ( we do all live from moment to moment - we only become more aware of it when struggling with PD or other issues) my life has improved tremendously. I do thank all of you who responded to my timidity in joining this group and offered words of wisdom and help. It really does take a village and this is a forum full of love and care. I am grateful to it and to you. Thanks

posted May 17, 2017
A MyParkinsonsTeam Member

I spent two years trying to find a movement disorders speciality in neurology. It was the best thing that happened. My husband was an absolute rock, and at times I did somewhat act resentful towards his comments when actually he was being supportive in the way he knew how. Getting the diagnosis was hard, but brought everything in perspective and I now am soooo very grateful for my husbands tenacity thru the process.

posted June 26, 2017
A MyParkinsonsTeam Member

You have come to the right place to post about your concerns without feeling bad about doing so. We all at sometime in our life, need a listening and understanding ear, my dear. My husband also has clinical depression and his primary care Dr. wondered in the beginning if the meds for it may have caused the Parkinson's symptoms, but after being tested several times over the period from 2011 to 2016 by his Neurologist diagnosed without a doubt, that he definitely has Parkinson's disease.

posted May 27, 2017

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