My mum is in the end stage of Parkinsons. The doctors have now taken her off most of the medication she was on as they say that because she has had Parkinsons for almost 22 years the medications do not work as they should. I could do with talking to others that have had or know someone that has had Parkinsons for this length of time. I'm so worried at the moment as last week mum was put on another drug to help keep her calm its called Trazadone but it has made her even worse she has been like a… read more
I have had PD for almost 20yrs. I have had to reduce my sinemet because the dyskinesias were becoming so violent and relentless. I also stopped taking Amantadine because it seemed to make me delusional. It got to the point that I was imagining seeing things and hearing people talking and loud banging noises. My wife Would have to bring me back to reality.
The Dr put me on Effexor. That seems to have helped to lift my mood a bit - no side effect so far. Been taking it for 3 months now.
I am my husband’s caregiver and don’t have PD myself, but wanted to mention that I have been taking Trazadone for sleeping for years with no problems. I began taking it because of my insomnia with Fibromyalgia. I take 50 mg. a night.
Melatonin is good but I have used and stopped a it made my health system upset over time. Since stopping melatonin sleep pretty well but not a total night always waking up for what I call a walk about to relax and then go back to sleep, All drugs react differently as one Doc told me " we practice medicine as the patient presents some times it works and other times we take a new course of action" Not always an exact science probably the reason medical practice is often called an "art".
mt daughter takes trazadon to help her sleep i would make sure she is no longer on that i feel as though there is no end stage of parkinsons i would keep on fighting
My Brian was diagnosed at the age of 42 he is now 70 none of the Drs we deal with have said anything about taking him of his PD meds surly they are making your Mom’s life a misery needlessly Brian takes Sinemet 25/250 1 tablet at 7.30 am 1/2 at 9.30 am 1/2 at 11.30 am then 1/2 at 13.00 1/2 at 15.00 1/2 at 17.00 and 1 1 Sinemet CR at 19.30 most days this works beautifully couldn’t imagine what would happen if they took his meds away holding you in my prayers