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End Stage Of Parkinson Help

End Stage Of Parkinson Help

My mum is in the end stage of Parkinsons. The doctors have now taken her off most of the medication she was on as they say that because she has had Parkinsons for almost 22 years the medications do not work as they should. I could do with talking to others that have had or know someone that has had Parkinsons for this length of time. I'm so worried at the moment as last week mum was put on another drug to help keep her calm its called Trazadone but it has made her even worse she has… read more

A MyParkinsonsTeam Member said:

I have had PD for almost 20yrs. I have had to reduce my sinemet because the dyskinesias were becoming so violent and relentless. I also stopped taking Amantadine because it seemed to make me delusional. It got to the point that I was imagining seeing things and hearing people talking and loud banging noises. My wife Would have to bring me back to reality.
The Dr put me on Effexor. That seems to have helped to lift my mood a bit - no side effect so far. Been taking it for 3 months now.

posted 12 months ago
A MyParkinsonsTeam Member said:

mt daughter takes trazadon to help her sleep i would make sure she is no longer on that i feel as though there is no end stage of parkinsons i would keep on fighting

posted over 1 year ago
A MyParkinsonsTeam Member said:

My Brian was diagnosed at the age of 42 he is now 70 none of the Drs we deal with have said anything about taking him of his PD meds surly they are making your Mom’s life a misery needlessly Brian takes Sinemet 25/250 1 tablet at 7.30 am 1/2 at 9.30 am 1/2 at 11.30 am then 1/2 at 13.00 1/2 at 15.00 1/2 at 17.00 and 1 1 Sinemet CR at 19.30 most days this works beautifully couldn’t imagine what would happen if they took his meds away holding you in my prayers

posted over 1 year ago
A MyParkinsonsTeam Member said:

I am my husband’s caregiver and don’t have PD myself, but wanted to mention that I have been taking Trazadone for sleeping for years with no problems. I began taking it because of my insomnia with Fibromyalgia. I take 50 mg. a night.

posted 12 months ago
A MyParkinsonsTeam Member said:

I have taken Trazadone to sleep for 8 years. I take 100 mg per pill. You might check how much your mother was given per pill. This is a rather mild drug but can take some getting used to. When I first started taking it, I wet the bed because it put me so soundly to sleep! How embarrassing. But I don't even have Parkinsons. I was given it for insomnia due to my anxiety about my wife who has Parkinsons and my brother who also has Parkinsons (what a small world). My wife takes Trazadone also but had problems at first. It might be best to start out with a low dosage. Trazadone, by the way, was supposedly the first anti-depressant created decades ago. But to calm people, it put them to sleep! Back to the drawing board. LOL Since then it has been used as a sleep aid. It isn't supposed to be addictive but when I forget to take it, I can't sleep.

posted about 1 year ago
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