Does Anyone Have Any Experience With A Gastro Feeding Tube? | MyParkinsonsTeam

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Does Anyone Have Any Experience With A Gastro Feeding Tube?
A MyParkinsonsTeam Member asked a question đź’­

I am considering a gastro feeding tube, sooner than later, and am wondering if anyone has any experiences they can share either as a patient or caregiver. What was the procedure like? Do you still eat regular food? Do you put blended food in your tube? Do you have any problems with keeping the tube incision area clean? Does cold water in the tube quench your thirst? This procedure is necessitated because I have swallowing problems. I had to be resusistated a number of times from… read more

posted April 18, 2017
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A MyParkinsonsTeam Member

My mother had MS. She had a gastrotube for the last 4 1/2 years of her life. David is correct in that there is a special blended liquid for feeding. Her medical insurance paid for the liquid. My father was able to load up the feeder. She did have home health nurses visit regularly to check her and the device. I think she had better nutrition through this method than when she was trying to eat. It was not painful to her. My dad had to go through some mental adjustments ("its not normal").

posted April 20, 2017
A MyParkinsonsTeam Member

Before my wife passed on last year, she had a tube. They have to use a special blended liquid for feeding. Since she was unconscious most of the time, I don't know much about the comfort aspect. I am not a fan of the gastro tubes.

posted April 19, 2017
A MyParkinsonsTeam Member

Thank you @A MyParkinsonsTeam Member and @A MyParkinsonsTeam Member for your responses.

posted April 18, 2017
A MyParkinsonsTeam Member

We just talked to the DR about this for my Mom. They also now are able to give you a constant drip of Carbo Levo through the tube which is one of the main reasons we were considering it..
https://www.duopa.com/considering/advanced-park...

posted April 18, 2017
A MyParkinsonsTeam Member

I worked with sick children that could not eat by mouth. a tube is inserted into your stomach with a clamp on it. They ate nothing by mouth a child liquid food replacement. , for adults not sure what. . you use a long tube hooked to a large syringe. U pour the liquid into the syringe held upright. It slowly goes from the tube to the stomach. It is flushed with water. If nothing can be taken by mouth water goes in the same way. It was full nutrition for them.

posted April 18, 2017

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